UK PARENTS mailing support list

[Jackie UK]

Hi to all UK parents

I just wanted to let parents/carers know that although this message board is not used that frequently by UK parents, there is a Children With Diabetes UK email support list. Which I run. E-mail lists help provide support and news to people living with diabetes. It is very busy and active with over 120 UK members. Lots of parents with children ranging from babies to 18 years olds. Many of the children are now pump users, so a good place to ask about insulin pumps if you are considering this as a therapy. Lots of children on Mixtards and Novorapid and Levemir or Lantus regimens.

Here is some information here about how to subscribe to the email list and details of how the email list works.

http://www.childrenwithdiabetes.com/uk/

You can subscribe to the list from a link there, or go to the main CWD on line website and find mailing lists, look for the heading "Geographical Mailing Lists" then you will see a link to the UK parents email support list. Make sure it is the UK parents list.

http://www.childrenwithdiabetes.com/people/mailinglists.htm

If you have any problems subscribing, I can manually subscribe you to the list. To remove yourself from the mailing list, should you need to, there is a link at the bottom of every mail from the support list. Click and you will be unsubscribed immediately. Or I can remove you from the list if there are problems.

Any problems subscribing let me know.

>jackie.jacombs@childrenwithdiabetes.com


Jackie Jacombs UK Parents List Manager.

[Diane14]

Can anyone tell me why the email list is more popular than the UK message board? I signed up to it but got over 100 emails in one day. I then tried out the condensed version ( or whatever its called) but it is has quite a few mails with computer code jargon all over them and others are repeated too many times. I tend to just read the main message board which is mostly american.

[Jackie UK]

Hi Diane

The UK emailing list has always been more popular than the message board. Partly because the mailing list was established first. Also, with a complex condition like diabetes, emails tend to be a much better medium for dealing with the complexity of the condition. The parents tend to discuss hospitals and schools and say what they really think!! which may not be appropriate for such an open forum as a message board. Many of the parents find other parents living close and do meet up. This year we had large family weekend meeting with 18 families meeting up.

If you use Outlook you can change "message rules" so that all the messages from UK CWD list go into one folder, rather than straight into your inbox with your other mail. Then you can read them when you want. All the mails are prefixed with CWD UK to make this easy. Or you can use a web based mail service like Yahoo or a cwdMail email service is a free, web-based e-mail service.

If all the members from the CWD mailing list posted on the message board because there was no longer a mailing list, there would be hundreds of messages to read here instead!!

I asked Jeff Hitchcock to set up this UK section on the message board quite some time ago, but most members still preferred to use the mailing list because its much better for swapping and discussing detail info. We do sometimes post things that would never be discussed in such an open and accessible forum.

You must have subscribed to the "digest version" however this is always very difficult to read and if people do not post in plain text, as they are supposed to, you get computer code! Plus the digest version is only delivered once a day, so if you post a message asking a question, you wont or might not received an answer until the following day.

The UK CWD group also have an advocacy group to raise awareness of the problems in schools and have had regular meetings with Diabetes UK, JDRF and INPUT. We have parents helping with diabetes issues on local PCTs etc.

Also have a large number of nurses using the forum.

Some people like message boards but some people prefer email.

You are always welcome back at any time.

Jackie Jacombs UK CWD list manager
jackie.jacombs@childenwithdiabetes.com





Can anyone tell me why the email list is more popular than the UK message board? I signed up to it but got over 100 emails in one day. I then tried out the condensed version ( or whatever its called) but it is has quite a few mails with computer code jargon all over them and others are repeated too many times. I tend to just read the main message board which is mostly american.

[bbdebs]

The best thing to do is set up a new email account eg at www.cwdmail.com and subscribe to the uk email list from this account. This way it stays separate from your normal email and you can log in to the web address and read at your leisure without it clogging up your normal email folder. There is also an email archive where you can read old messages. The UK email list now has a separate 'off topic' list for emails not to do with diabetes so there should be fewer emails.

[Link]

huh looked at post dates, and this forum IS slow... just joined, and I am from UK (and a forum veteran elsewhere :) ) so I prefer this type of communication to e-mail. Hopefully it will speed up here a bit too, with so many of us in UK having kids/ourselves with Diabetes this is eventually bound to speed up...

btw how is the board managed, are you allowed to share your negative opinions on the system? just to ask (or maybe I need to do some searching and read the rules first :cool: )... my experience so far (diagnosis, first 10 days and the first clinic) in my area has been very positive.

anyhow thanks for the notice about the mailing list.

[Amy C.]

Here are the rules for this forum:

Commercial advertising or product promotion of any kind is prohibited. This includes links to web site affiliate programs, regardless of the product mentioned, and promotions of studies or research of any kind. If you want to advertise within this site, see Advertising and Sponsorship.

Messages promoting products without scientific support in the treatment of type 1 diabetes (e.g., vitamins, exotic fruit juices, etc.), or messages advocating 'miracle cures' or similar claims, are not permitted and will be deleted immediately, along with the user who posted them. The CWD editorial team has sole discretion about what constitutes innapropriate content.

Messages promoting any product sold via multi-level marketing will be immediately deleted. Users who continue to post such messages will be permanently banned. (See MLM Watch.)

Profanity and abusive messages of any kind are prohibited.

Posting of the same message in more than one conference is strongly discouraged. Users of the board are encouraged to read all new messages, regardless of the conference.


Jeff Hitchcock manages this forum and enforces these rules very quickly.