New with a question

[tnmom]

My daughter is 6 years old. Since she was little I've had problems with her having "melt downs". She has always been hungry and thirsty all the time but more so that last year or so. My father was a Type 1 so i kinda know what to look for and we have a history of pancreatitis in the family between my father and me. Since she was 4 she has been a bedwetter even after being dry at night for a year. I brought this up to the DR and they did a ramdom on her but it was normal. Well a few weeks ago I did a fasting test on her and it was 140 which I know is not all that high. I called her ped and she said to just watch it over the weekend. I was getting alot of normal reading around 90-120 but still got a few around 160. I changed her diet and all the reading were normal. The ped said everyone looked normal and not to worry. I then changed her diet back to "normal" and I got a fasting reading of 167 do I changed her diet back to restrict the amount of carbs and sugar. I do have an appointment with a new ped on Friday but from everyones experience, do I have something to worry about?

Thanks so much

Tuesday:confused:

[Denise]

I'm not vey experienced in the D dept since we were just dx'd in May but wanted to say how great it is for you to be on top of things! I know there are a few parents around here who pushed until they got answers...they will chime in and say what they saw before hand and how it ended up. Welcome to CWD :cwds:

[jcanolson]

Welcome! Hopefully you just have a temp. stay here!

I'm no expert, but a fasting of 167 would concern me. Push to get the dr. to really check into this. I, personally, would not change her diet until after seeing the dr. especially since you wil be seeing them soon. It could affect some of the tests, etc. I would get some ketone test strips (they are over-the -counter) and check to make sure she doesn't have ketones in her urine.
What part of TN are you in? We're in the eastern corner.
Good luck with the dr.

[tnmom]

I did get ketone test strips and test her when she is high and has a stomach ache but nothing so far. With her normal ped dr not wanting to do anything about it I did e-mail an endo at Vanderbilt and after talking a few days he told me to get her checked out because he didn't like what I told him. That is why we are going to a new ped dr to see what he thinks. The dr at Vanderbilt thinks it might have something to do with the pancreatitis that runs in the family. I hope I'm just being a worry wart and she is just fine.
We are in the Nashville area.

Thanks

[Lee]

Good luck and I really hope it isn't Type ! - it could be that she just isn't feeling well, which would cause her #'s to go up a little. There are also a lot of parents here who swear their kids had a much longer onset with some of hte things you are describing. I think keeping a good eye on her until you see the new pedi is a smart idea. Also, if she starts to feel lethargic, you probably want to take her to the ER.

[jcanolson]

I did get ketone test strips and test her when she is high and has a stomach ache but nothing so far. With her normal ped dr not wanting to do anything about it I did e-mail an endo at Vanderbilt and after talking a few days he told me to get her checked out because he didn't like what I told him. That is why we are going to a new ped dr to see what he thinks. The dr at Vanderbilt thinks it might have something to do with the pancreatitis that runs in the family. I hope I'm just being a worry wart and she is just fine.
We are in the Nashville area.

Thanks

Sounds like you are on the right track. Stick with it until you get some answers. Hopefully you are just being an obsessive, paranoid mother!

[tnmom]

Ok so I let my daughter eat what she wanted for dinner, nachos, and about half way through she started to complain that her stomach was really hurting. At that point she started drinking water and about 1/2 hour later she felt better. Then her sugar was only 99. Now she is bouncing off the walls and having one of her melt downs. She is killing me. When she has a melt down NO ONE wants to be around her and she hates everyone and we can't do anything to make her happy. Does anyone else have a child that acted like this before they were dx'd?

Thanks

Tuesday

[saleanasmom]

sounds like we are in the boat. only my 6 year old is having the melt downs and perfect blood sugars and my 3 year old is having the high blood sugars but doc says everything is fine. having both in one package would be hard. where does the sugar issues end the 6 year old begin. that is a question that I think is hard for anyone that has a kid with medical concerns.

[tnmom]

I put her to bed last night and she completely lost it because her brother was breathing while she was trying to go to sleep. What was up with that? So after about an hours of crying she finally fell asleep. I got up and checked her around midnight and she was 190. I wanted to scream. This morning when she woke up at 6:30 she was 78. She soaked through her pull up again so another day of washing sheets. I let her eat normal cereal for breakfast so we will she what she does with that. I just hope this ped dr tomorrow does something about her.:mad: