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Lizzy731
07-02-2008, 11:04 PM
I have been reading the recent dumb comment posts and cannot believe how ignorant people can be! I am curious to see the most stupid comment that people have heard since your child has been diagnosed with D. I fortunately have not heard really stupid comments (just the inevitable "will she grow out of it?"). I want to prepared with a smart comeback when and if it happens! ;)

jcanolson
07-02-2008, 11:37 PM
"I don't know why anyone would have diabetes when they can JUST get a pancreas transplant." JUST?:confused:

Tresstonsmom
07-02-2008, 11:41 PM
My favorite:rolleyes: one so far was: "What did you feed him to give him Diabetes?"
:mad:Why do you want me to make you some too!?!?!:rolleyes:

That one was asked by my BIL while we were STILL in the hospital....I think that man was dropped on his head one to many times as a baby.....

bgallini
07-03-2008, 12:10 AM
Alex was 15 at dx and a kid he knew asked him 'if it was some sort of STD or something' LOL!!!

jendean
07-03-2008, 12:22 AM
"I don't know why anyone would have diabetes when they can JUST get a pancreas transplant." JUST?:confused:

Yeah, I dont know why anyone would walk around all stupid like that, when they can JUST show up when they are passing out brains.

Ooops. childish, mean, and fun. all wrapped into one. :eek:

valerie k
07-03-2008, 12:49 AM
"well, it could be worse, he could have diabetes like my (insert name here, usually an older person, overweight and has type 2)

er, yea.... could be so worse, so and so got to eat everything and anything for YEARS and YEARS and now... they must adhear and ***** about thier schedualed life with the big D.... want me to call the wwhhaammmbulance?

michellesims
07-03-2008, 01:44 AM
"If you eat that donut you better start to read brail(sp?) now because if you keep eating that way you will be blind soon.":eek:

Darryl
07-03-2008, 02:27 AM
"That's good that she has the Juvenille kind. What age will she grow out of it?"
--- 5 out of the first 10 people who I told.

"What is this? You can't bring this on the plane"
--- A TSA agent at Philly International, questioning an ice pack in her insulin bag.

"It's OK, It's diabetes. She needs it to keep her food cold"
--- The TSA agent's supervisor

Mama Belle
07-03-2008, 03:00 AM
My ex-MIL actually said the worst I've heard, "well, she has type 1 now but when she gets older she'll have type 2 and that wont be as bad." Only way I can figure it is that she must've been having chats with Halle Berry. ;)

Actually, I adore my ex-MIL, she is a really good person and has learned a ton about D. She just didn't really understand it at the beginning. You can't really fault her for that.

Twinklet
07-03-2008, 03:05 AM
My ex-MIL actually said the worst I've heard, "well, she has type 1 now but when she gets older she'll have type 2 and that wont be as bad." Only way I can figure it is that she must've been having chats with Halle Berry. ;)



LOL!!!!!!! That is one of the funniest things I've read on here!

deafmack
07-03-2008, 03:05 AM
you got diabetes because you ate protein.

You can know how many carb grams you ate just by weighing the empty bag.

RosemaryCinNJ
07-03-2008, 08:48 AM
When a friend of my husbands said to me while visiting our home "This is the 2nd time you have mentioned Amandas diabetes since I been here"...I was asking my DH to please test her finger.. I was like "EXCUSE ME? this is our life now and if it bothers you then dont let the door hit you in the caboose on the way out..what a jerk! I guess he would of prefered that I put Amanda in a closet until he left...moron!!! Ok now you got me going!!! lol... (that friend has not been back here since..good riddance right?)

Ellen
07-03-2008, 10:57 AM
One of the first questions I asked the ped endo in the ER was "Will he grow out of this?" So, I have tremendous tolerance for this question.

MamaChrissa
07-03-2008, 11:05 AM
"Jason has D....but Caitlin doesn't? Are you sure they are twins?" Ummm...yeah....:rolleyes:

zimbie45
07-03-2008, 11:05 AM
I was yelle dat by anouther shopper at a grocery store when she found me and charlize looking at a food label.. Charlize had asked me how to read carbs and we where talking about carbs and how to read the label.. THE lady yelled at me because i was what was wrong with all these girls these days and causing them to have weight issues, and causing things like bulimia and anirexia.. and i should be ashamed of myself for teaching my young child such things and i am going to mentally scar her for life.....

I let her go on, WHen she was done i kindly helped take her foot out of mouth when it told her that my child had type 1 diabetes and she needs to know how to read and count carbs, so she knows how much insulin she needs so she does not DIE...

SHE APPOLOGIEZED...

CJ's Mom
07-03-2008, 11:09 AM
"So when he checks his blood sugar, he just holds the meter in his hand and the meter tells what the blood suger is, just like they show on the tv commercials, right?"

We were talking about our vacation time at work and I mentioned that I was out of vacation time until September so when I take CJ to the endo later this month I won't get paid for that day. C0-worker says, "Well, you don't have to take him to every appointment, can't your Mom just take him?" I shook my head and walked away.

cadesmom
07-03-2008, 11:12 AM
These comments came from the school nurse:

You need to contact that boy's doctor, he is the only kid in school that's not regulated.

You need to simplify his D care.

He should'nt have that CGM it's not even FDA approved.

Sarah Maddie's Mom
07-03-2008, 11:18 AM
The one that really annoys me is, "Does it run in your family?" There is just no way, imo, to respond to this question. I resent that the questioner is both looking to shield her/himself from D because it doesn't run the in their family ( presumably) and at the same time judging me for carrying on a genetic time bomb because it presumably runs in mine.

That may not be how people mean it, but that's how it feels to me.

cowdenclan
07-03-2008, 11:24 AM
I have heard SOO many stupid comments already and Molly was just Dx'd on May 15th 2008. People are VERY clueless. I think it comes from so much press about type 2 and eating healthier....The media needs to clarify the difference of T1 & T2 whenever they publish something! I can't believe how annoying it is! I always thought I was laid back enough to blow off the comments but I'm getting to my boiling point....GOD help the poor person who catches my pent up wrath!

toohughey
07-03-2008, 11:30 AM
The one that really annoys me is, "Does it run in your family?" There is just no way, imo, to respond to this question. I resent that the questioner is both looking to shield her/himself from D because it doesn't run the in their family ( presumably) and at the same time judging me for carrying on a genetic time bomb because it presumably runs in mine.

That may not be how people mean it, but that's how it feels to me.

My usual response to that comment is: Oh yeah, just pin the blame on me and my genes again. D is a faultless disease that seems to strike randomly in some cases. If they knew why and how it happened I could have seen it comming or prevented it.

StillMamamia
07-03-2008, 11:37 AM
From my next-door neighbor (friendly but just won't get it, so I don't get upset anymore...just annoyed)

- Oh, you must've fed him a lot of water with sugar when he was a baby.
- Well, since you have it then your kids also have it. (Ahem...I don't...I'm chubby, but I don't...did I say I don't:confused:)
- It could be worse. It's not like you're losing sleep over it. :rolleyes:
- Oh. my mother has it. It's easy to control. Just test, avoid fatty foods and sugar, and that's it.


From my MIL...no further comment necessary.:(

- See, I always told you breastfeeding wasn't hygienic. That's why I never breastfed my kids. I went to a seminar, and the doctor there explained breastfeeding was not good for kids. (**Me - if I just punch her nose ever so slightly with the blunt force of a truck, will she stop???...Aaaahhhh....let me focus on this lovely imagery**...LOL)
- It's surely not from our side of the family. I mean, your culture is known to not be very hygienic.:eek:
- One of our friend's sister was going almost blind, and then she saw an amazing doctor in Brussels,a nd now she's cured. You have to go see him. (**me thinking 'Thank you for trusting us as parents!**)
- This would never happen with our other son's boy. I mean, his mom did not breastfeed, and she's from here so...


Others:

- Oh, that's so sad he cannot be a normal kid!

twodoor2
07-03-2008, 11:51 AM
I do have a lot of tolerance for stupid questions because I asked many of them myself when Elizabeth was first diagnosed - all of you probably would have loved to hit me over the head with something.:o I didn't even know there were TWO kinds of diabetes, and many people still do not and lump them all together. I think THAT's the big problem. When my pediatrician told me she had Type 1 diabetes, I thought that was better than Type 2.:rolleyes: I was totally clueless.

My intolerance comes when I hear people in the medical profession give extremely dumb advice, or continue to prescribe old and backwards insulin regimens to very young children. That drives me crazy!! Some of the best and most sound advice comes from this forum, and if I had to rely on my endo to make dosage changes, my poor DD would have wound up back in the hospital.

Oh yes, and anything that comes out of MIL's mouth drives me nuts. She should know better by now.

robinseggs
07-03-2008, 11:58 AM
I guess the worst for me is when some "know it all" starts "blowing off steam" about all these things that "CURE" diabetics!! About how so & so ate it for 3 days and they were cured...or some magic tea that lowered their numbers and then they were cured... Usually I just stare at them and dont' know whether to cry or beat the crap out of them...(and I'm not a violent person!) LOL Robin

momandwifeoftype1s
07-03-2008, 12:07 PM
The worst for me was when my best friend from high school talked to me the first time after Connor's diagnosis. She asked "Have you tried alternative therapies? Asians have been curing diabetes for thousands of years with diet and herbs." Huh?

suphillips
07-03-2008, 12:13 PM
My worst so far was from my own mother. She asked how Gracie was doing, and I explained that she was still honeymooning, so things were going pretty well, we were able to keep her pretty stable and her insulin needs were still relatively low. Her reply: "Well maybe this whole diabetes thing isn't such a big deal after all." Good thing it was over the phone, 'cause I wanted to dope-slap my own mother!

Amy C.
07-03-2008, 12:21 PM
I made a pretty stupid remark when Philip was in the hospital. He had just had his finger pricked for the first time (and hard) and was screaming like most 3 year olds will do.

I tried to comfort him by saying, "Don't worry, this will happen only once."

The nurse had to say that this wasn't true. He would have lot of finger pricks.

At 10.5 years later, he must have had nearly 25,000 finger pricks by now.

bflohockeymom
07-03-2008, 12:28 PM
The one that really annoys me is, "Does it run in your family?" There is just no way, imo, to respond to this question. I resent that the questioner is both looking to shield her/himself from D because it doesn't run the in their family ( presumably) and at the same time judging me for carrying on a genetic time bomb because it presumably runs in mine.

That may not be how people mean it, but that's how it feels to me.

I know what you mean. My dad's half sister had type 1 and my ex's cousin has it. So it's on "both sides" of our families technically. So when my son and I got tested for TrialNet and did not have the diabetes antibodies, my mom said "so that means she got it from her father, right?" He's not my favorite person but we really can't blame him for this!

bflohockeymom
07-03-2008, 12:34 PM
My mom is always good for a few! I guess I get more frustrated at her the longer she spends time with her granddaughter because I feel like she should know better by now. Towards the end of this school year, Samantha was running really high and I kept finding bubbles in the pump, etc. So one day the school nurse calls to warn me of her high BG before getting on the bus. I race home to meet them and I'm checking the pump, etc. My mom says "this is happening alot lately. Isn't there something you can do?"

"Uh, there is but I just really don't feel like it today!" Oh I so wanted to smack her! But I know she didn't mean it *that* way. Just like her comment a few days later when I was repeating instructions AGAIN she said "I know you've told me that before but I just can't remember all of this." RIGHT!

Darryl
07-03-2008, 01:09 PM
One of the first questions I asked the ped endo in the ER was "Will he grow out of this?" So, I have tremendous tolerance for this question.

Actually, you are right. I asked my pediatrician the same thing. Along with "are you sure that a blood sugar of 600 and going to the bathroom every 10 minutes really means diabetes, or could it be something else?"

I'll stick by the "It's good that it's the Juvenille kind" though!

mickdg
07-03-2008, 01:32 PM
I have been reading the recent dumb comment posts and cannot believe how ignorant people can be! I am curious to see the most stupid comment that people have heard since your child has been diagnosed with D. I fortunately have not heard really stupid comments (just the inevitable "will she grow out of it?"). I want to prepared with a smart comeback when and if it happens! ;)


We don't get upset at all with questions like that. That particular question was exactly what we asked at the clinic when we first brought Matthew in and he was diagnosed. We use the opportunity to educate.

Offensive/mean-spirited comments are another story. Haven't had any of them, yet...

ADHDiabetic Mom
07-03-2008, 02:38 PM
"Jason has D....but Caitlin doesn't? Are you sure they are twins?" Ummm...yeah....:rolleyes:

Okay, that one made me laugh out loud!! :D

Mama Belle
07-03-2008, 02:43 PM
We don't get upset at all with questions like that. That particular question was exactly what we asked at the clinic when we first brought Matthew in and he was diagnosed. We use the opportunity to educate.

Offensive/mean-spirited comments are another story. Haven't had any of them, yet...

I can't really say that I get mad at most comments. Usually people make them out of ignorance. I have yet to find someone who said something really stupid about D and said it maliciously. Most people I've encountered just don't know any better, so I try to teach them and they are very receptive. Although I think my experience is probably the exception around here. I will say that my ex-MIL's comment about type1 turning into type 2 threw me for a loop at the time because her husband had been type 2 for many many years at that point. I incorrectly presumed that because he had type 2 she would know the difference between the 2 types. I remember at the time that I was very dismayed by her comment about her granddaughter, but after taking a step back realized that she knew very little about either disease. She has certainly come a long way! :D

CButler
07-03-2008, 03:34 PM
When My child was diagnosed, on the way to the hospital, I thought,"Well, it just means two shots a day and no sugar." How dumb was that????? Not that I wasn't nervous, sad and all that. I just didn't know.

I get tired of people saying..."so and so child has this terrible disease that is worse than diabetes..." like that makes me feel good about mine having diabetes???? I guess that goes along with people who say "It could be worse." I get that all the time. I'm sure you do too.

staciebco
07-03-2008, 03:55 PM
I don't know if this is the stupidest comment, but certainly the most recent. While at the pharmacy yesterday, picking up our normal D supplies, strips and Novolog, plus 2 Glucagon, EMLA, a bottle of Lantus, and ketone strips, the new pharmacist actually said to me...."he must have diabetes really bad!" :eek: I just rolled my eyes and said no worse then most 6-year-olds with D.

Gimme a Break! You're the pharmacist you really should know better.

A&Ds Mommy
07-03-2008, 04:11 PM
I don't get any real stupid comments or questions just misinformed ones.

I remember DH asking the ER pediatrician when Dylan was diagnosed, "Does this mean he won't ever be able to have McDonald's?"

Bsbllmom
07-03-2008, 04:12 PM
Considering who these comments came from I think I win. Well maybe a close 2nd to Heather(CA)'s "What's and endo?" comment.

After a reading over 250, 3 hours after dinner. "Is that because he ate too much or not enough?"

After being told that Christian was accepted to the free D camp in August. "Oh that is good..........that's for the pump right?"

Both of these from DH just recently:mad:

Lizzy731
07-03-2008, 05:08 PM
Thanks...I had a really good laugh at some of those. As I said before the only comment that I have been receiving is will she grow out of it which I don't mind at all because I asked this question when she was diagnosed. People naturally want children to be healthy and they are only trying to be nice when they ask this question. I just wanted to clarify because some people that responded seemed to think that that comment irks me. It doesn't at all.

mom2kenny
07-03-2008, 10:17 PM
I asked the carb count on an item at a local bakery, and the girl told me they didnt add any carbs or any other additive to their products!

U of I Mom
07-04-2008, 12:47 AM
BIL came to our house a few weeks after son's diagnosis and was upset at dinner when he tested at the table. He thought he should go into the bathroom (and this was in OUR house!).

RosemaryCinNJ
07-04-2008, 08:58 AM
I asked the carb count on an item at a local bakery, and the girl told me they didnt add any carbs or any other additive to their products!

Wow..where is this fantasy bakery? lol...

RosemaryCinNJ
07-04-2008, 09:03 AM
BIL came to our house a few weeks after son's diagnosis and was upset at dinner when he tested at the table. He thought he should go into the bathroom (and this was in OUR house!).

[That was similiar to my post;;the people who visit your home and are so uncomfortable with diabetes and they make it KNOWN verbally ..test in the bathroom though?? I would of told him .."because it might be a little crowded in there with you headfirst in the toilet" lol.. wow, some people I tell ya!!!

TerpSteph
07-04-2008, 10:00 AM
Since my son was diagnosed, I have tried not to get too upset at the typical comments and questions like "will he outgrow it?" or "my father-in-law doesn't have to do all of that." The thing I'll never forget is something my brother said. We were driving to Childrens' Hospital on Easter Sunday right after Matt was diagnosed and I was calling our siblings to let them know what was going on. My brother listened, said "aww that's too bad" and then asked me if my mother had told us about the scratch on his one-year-old daughter's ear. Amazing! :rolleyes:

Tigerlilly's mom
07-04-2008, 12:27 PM
"Jason has D....but Caitlin doesn't? Are you sure they are twins?" Ummm...yeah....:rolleyes:


LOL - That is too funny - Maybe it's just your imagination that you had two babies at the same time - :confused: silly you

Thanks for the chuckle!

skimom
07-04-2008, 12:42 PM
That twin comments reminds me of when I heard a lady ask a mom if her twins were identical- she obviously didn't notice that there was a boy and a girl....

Cool_Cuz
07-05-2008, 02:15 AM
"well, she has type 1 now but when she gets older she'll have type 2 and that wont be as bad."


I've had one of those...only it was SO different and so much less annoying because it was in the form of a QUESTION. I had explained to my best friend that type 1 is insulin dependant and that type 2 is not, but hadn't gone into deep enough detail to get across that they're completely different diseases. :o

The worst comment I've gotten was actually not stupid, but it hurt badly to hear. This was also from my best friend...

I was explaining in minor detail how to use a glucagon (I had just learned myself that day), and he says "Wow...so if you mess up with something like that, he could DIE..." :eek:

He wasn't being mean or negative, I think it was just that he had only then realized how serious D is. He apologized and tried to make it better, but I'll never forget hearing him say that. :(

buggle
07-05-2008, 03:00 AM
Actually, you are right. I asked my pediatrician the same thing. Along with "are you sure that a blood sugar of 600 and going to the bathroom every 10 minutes really means diabetes, or could it be something else?"


When my son was dx'd at the pediatrician's, I asked the doctor if there were anything else that could cause sugar in the pee, but diabetes. I really, really didn't want to believe it, even though I took him in due to symptoms. It's a terrible thing to hear as a parent. Once they checked his blood, it took everything I had not to fall apart in front of my kid. I called the school to say he wouldn't be back in, since we had to head down to Barbara Davis immediately and broke down and sobbed. My husband still wanted to believe it was a fluke due to an antibiotic Brendan was taking that was supposed to mess with glucose metabolism. I think denial is the easiest way to cope when you find out. Was for us, anyway.

I have a pretty thick skin, so I don't remember dumb things people have said. It just rolls off my back, though if someone came up with a really, clueless zinger, I'm sure I'd remember it. :D

We're pretty lucky and sheltered. Both of our families are smart enough to learn something about a disease before they blabber and Brendan's school is a magnet school with parents who are better informed than most. I got nothing but support from them from the very beginning and not one stupid comment about what he'd been eating or anything. And right after he was dx'd, a really good article came out in the local paper about T1 diabetes and the impact on the family. Several moms brought a copy in for me and lots of people at school, including the principal, asked if we'd seen it. I think that really helped people to be sympathetic about what we were dealing with. I sent the link of the article to all of our family and I think it helped them to have a better idea of how our lives had changed and how our world had been turned upside down.

Some of you might find that article (http://www.dailycamera.com/news/2008/apr/15/young-and-type-02/) useful to pass on to family, friends, school or anyone you think might need a little help understanding what it's like to have a T1 child.

Kathleen, are you a member here? :cwds:

AlisonKS
07-05-2008, 11:35 AM
when I told a man at the grocery store that his bracelet was for type 1 diabetes (get a lot of questions on that), he asked if he'd outgrow it. I said "no" and he kept asking "are you sure? are you sure?"-like I wouldn't know a thing about it. My grandfather, whose daughter passed away from type 1 over 20 years ago said something like "my daughter had it, and she never got to grow up, she died" and he finally shut up. I was kind of shocked that he said that but now I know that seeing Tony is opening up a lot of old bad memories for him sometimes (it's getting better and now he brags about him), but I'm glad he was there to stand up for me cause I just moved here and was exhausted!

linda
07-05-2008, 02:06 PM
I have been reading the recent dumb comment posts and cannot believe how ignorant people can be! I am curious to see the most stupid comment that people have heard since your child has been diagnosed with D. I fortunately have not heard really stupid comments (just the inevitable "will she grow out of it?"). I want to prepared with a smart comeback when and if it happens! ;)
unfortunatly, i feel it is due to the obviously non-educated public re the difference bet T1 & T2. Mostly we get"but shes so thin"..."do you restrict her diet?"...."we heard that if you give her vitamins she will be cured"...yada...yada....yada..."

realsweety
07-05-2008, 02:30 PM
I think the worst stupid comment I got was the most hurtful of all of the ones I have heard.I even posted about it once.my sil said "allison should be on the organ transplant list,becouse her organs will fail someday" my husbands come back was "that will never happen...and if she does need a transplant we will just take yours ,becouse you are just a waist of space "they both apologized to each other later.and she swore she would never say anything like that again.

Aidan'sMom
07-05-2008, 02:32 PM
I haven't encountered any really stupid comments yet, but I am sure they will come some time or another. I have only had a few comments that bugged me a little, but I am the type to just explain to people that what they are saying is not accurate. Here are a few I remember........

1)From a co worker at daycare: Me, "Come on Aidan let's go, you, your brother and I are gonna stop and get some ice cream on the way home." Co worker, "Aidan can't have ice cream!!" Me thinking, "So you are gonna tell me what my child can and cannot have." I just said, "Aidan can have pretty much whatever he wants with the exception of a few things, he just has to have insulin for the carbs."

2)My mother in law not too long ago ( I am one of those rare daughter in laws that the mother in law actually adores, she mostly means well, but sometimes says stuff that pisses me off): MIL, "When you know everything you need to know to control Aidan's diabetes then you can teach it to me." Me thinking, "If I ever reach the point where I know everything there is to know I promise I will teach it to everyone!!" I just said, "ok". And just Monday she called to ask if my 4yr. old son wanted to come spend a few days with her and made no mention of Aidan, (granted if she had asked for Aidan I probably would have said no, but anyways...) I said yes he could go and the next day I found out that she went and got my niece and nephew to stay also. When I said something about Aidan and I coming over to swim she said, "Yeah, I hated not being able to get Aidan and let him play with the others, but if he went low or high while they were are all here it would be just too much to deal with." Me thinking, "Are you seriously never going to keep him again because of his diabetes?" I just said, "Maybe you need him by himself a few times before you tackle all of them together." She just said, "yeah." Whatever!

3)My Mom (God love her she is the only one besides my husband that can take care of my son in my absence and in all actuality probably knows more about how to do it than my hubby) the things she says don't ever make me ill they just make me laugh most of the time: She said one time that I should just not give Aidan any carbs, then he would not have to have insulin and wouldn't need shots!! Ah, if it were only that simple! Also every time she is around and I check his BG she says, "What was his blood count?". It is so annoying. I don't really mind her wanting to know she's just concerned, but she could at least say blood sugar or blood glucose, but no, every time it is blood count!! LOL!

I am sure there are more but that is all I can think of right now!!!

bgallini
07-05-2008, 04:52 PM
Some of you might find that article (http://www.dailycamera.com/news/2008/apr/15/young-and-type-02/) useful to pass on to family, friends, school or anyone you think might need a little help understanding what it's like to have a T1 child.

:cwds:

That's a great article! It was very fortunate that it came out right after your son was dx. I bet that's a big part of why so many people around you understood more about D.

bgallini
07-05-2008, 04:58 PM
when I told a man at the grocery store that his bracelet was for type 1 diabetes (get a lot of questions on that), he asked if he'd outgrow it. I said "no" and he kept asking "are you sure? are you sure?"-like I wouldn't know a thing about it. My grandfather, whose daughter passed away from type 1 over 20 years ago said something like "my daughter had it, and she never got to grow up, she died" and he finally shut up. I was kind of shocked that he said that but now I know that seeing Tony is opening up a lot of old bad memories for him sometimes (it's getting better and now he brags about him), but I'm glad he was there to stand up for me cause I just moved here and was exhausted!


I think some people, like the man in the grocery store just feel so bad to hear about our children having D so they say stupid things b/c they don't know what to say. Asking if they will grow out of it is sort of like saying 'but it will be okay, right?' in hopes that you will say, 'yes, don't worry it will be fine.'

I recently told a friend (who I rarely talk to) about Alex's D and she was totally speechless. She just said, 'oh' and nothing else. Again, I think she was just shocked and didn't know what to say. I had to quickly give her a run down of how it affects him and say that he was doing well and then change the subject.

Lisa P.
07-13-2008, 06:49 PM
Had my family visit this weekend and had to drag this thread back (kicking and screaming) because I thought this was the funniest.

My brother is a mechanical engineer, very sharp. While they were here, the whole family did an AMAZING job trying to understand and sympathize with the situation, some of them had me lancet them to see how it felt, whole nine yards. So by day four I'm thinking they really understand, as much as they can. I'm showing my brother this logbook program that charts all the blood sugar numbers for 12 weeks as little dots, with lines showing which ones fell into high, low, target, etc. His math/statistics brain kicked in, he points at the lows on the screen and tells me that he doubts these numbers. I tell them they are not projected, etc., they are actual numbers from actual meter tests. Yeah, he said, but any equipment is going to have a certain number of errors -- I think he was saying that there is going to be some error in any set of data and that the dots that fell under the red line should probably be discarded in any analysis of the numbers! I tried to explain, and he starts by saying, "well, for example, you can't get to zero, can you?" I tell him I don't know, but you can get close enough to make no difference, if I gave her 30 units instead of 1/2 unit that would do it. He says, yeah, but that's artificial. Yes, I tell him, shocked -- all lows are artificial! He's so smart, and he was really paying attention, but he just didn't get it that her blood sugar numbers only really go down when we give her manufactured insulin.
This stuff is really, really hard. How do we get it as much as we do, even?

bgallini
07-13-2008, 06:54 PM
Had my family visit this weekend and had to drag this thread back (kicking and screaming) because I thought this was the funniest.

My brother is a mechanical engineer, very sharp. While they were here, the whole family did an AMAZING job trying to understand and sympathize with the situation, some of them had me lancet them to see how it felt, whole nine yards. So by day four I'm thinking they really understand, as much as they can. I'm showing my brother this logbook program that charts all the blood sugar numbers for 12 weeks as little dots, with lines showing which ones fell into high, low, target, etc. His math/statistics brain kicked in, he points at the lows on the screen and tells me that he doubts these numbers. I tell them they are not projected, etc., they are actual numbers from actual meter tests. Yeah, he said, but any equipment is going to have a certain number of errors -- I think he was saying that there is going to be some error in any set of data and that the dots that fell under the red line should probably be discarded in any analysis of the numbers! I tried to explain, and he starts by saying, "well, for example, you can't get to zero, can you?" I tell him I don't know, but you can get close enough to make no difference, if I gave her 30 units instead of 1/2 unit that would do it. He says, yeah, but that's artificial. Yes, I tell him, shocked -- all lows are artificial! He's so smart, and he was really paying attention, but he just didn't get it that her blood sugar numbers only really go down when we give her manufactured insulin.
This stuff is really, really hard. How do we get it as much as we do, even?

Yikes!!! He is right in that the meter isn't totally accurate but he is definitely wrong that you should just ignore those numbers. Maybe after he thinks about it for awhile, he'll get it. LOL

Anja821
07-13-2008, 07:00 PM
From my MIL...no further comment necessary.:(

- See, I always told you breastfeeding wasn't hygienic. That's why I never breastfed my kids. I went to a seminar, and the doctor there explained breastfeeding was not good for kids. (**Me - if I just punch her nose ever so slightly with the blunt force of a truck, will she stop???...Aaaahhhh....let me focus on this lovely imagery**...LOL)
- It's surely not from our side of the family. I mean, your culture is known to not be very hygienic.:eek:
- One of our friend's sister was going almost blind, and then she saw an amazing doctor in Brussels,a nd now she's cured. You have to go see him. (**me thinking 'Thank you for trusting us as parents!**)
- This would never happen with our other son's boy. I mean, his mom did not breastfeed, and she's from here so...

Are you from the US or Europe? I thought breastfeeding was very acceptable in Europe? What's not hygienic?? OMG! I better warn my niece that her daughter will be D in a couple of years.

twodoor2
07-13-2008, 07:19 PM
When Mark (the H) asked me why I had to bolus for corn. He didn't know that corn is a carb.:rolleyes:

Tripletmommy
07-13-2008, 09:14 PM
"Jason has D....but Caitlin doesn't? Are you sure they are twins?" Ummm...yeah....:rolleyes:

Hahaha! I have to laugh cause I hear this all the time too - only mine is in the form of "but if they're the identical ones, how come only one has diabetes?!?!?!" :rolleyes:

mom2Hanna
07-13-2008, 09:34 PM
My sil sent Hanna a book written by a boy with diabetes in the early 1980s. I know she meant well but the information was painfully dated. The title is "Sugar was my Best Friend" and is all about how he couldn't have candy anymore. I have no idea where she got it, I just didn't even give it to Hanna.

ScottB
07-13-2008, 10:26 PM
"T1D, is that the good or the bad diabetes?"
I replied "I didn't know either one was any good."

kiwikid
07-13-2008, 10:30 PM
The Mum of my best friend from Primary School laughed when she heard I had a daughter with Diabetes and said "I always knew you ate too many lollies as a child" :confused::mad:

nymomof3
07-13-2008, 10:45 PM
When one of my sisters was asking why ice cream was the only dessert at a family bbq and another sister explained that this way everyone would be having the same thing and Kevin wouldn't feel left out because of his diabetes and she said "Oh I always forget about that" I could understand if we never saw each other, but she lives about 5 minutes from me!

Needless to say she won't be watching him anytime soon!

Pavlos
07-14-2008, 01:10 AM
We visited an ear-throat specialist:

Me: Doctor, I would like to point out that Nephele has T1 diabetes.
Doc: Oh. Does she take something for it? (!!!!)
Me: Yeah, aspirin.

A formerly dear relative:

Aunt: Maybe its God's way of letting you know that you should take Nephele to church more often.
Me: If the deity you believe in were such a petty and vindictive character, I would like to have nothing to do with him/her!

kyleesmom
07-14-2008, 01:34 AM
Right after Kylee was diagnosed, I ran into the mom of a friend of hers. This mom also volunteers during lunch at Kylees school. She told me that she had seen Kylee eating the last few days and she sure was eating big meals(a sandwich, sugar free jello and no sugar added applesauce and a 2 carb juice) and that she had talked to her about eating nutritious foods and the things that were bad for her, like cupcakes and candy. Then she went on to tell me how she was hypoglycemic and has low blood sugar like once a week and she knows exactly how Kylee feels and if she needs anyone to talk to or if we needed advice, just give her a call. I so badly wanted to tell her that she was off her rocker thinking she could relate to Kylee and that she did not need to be giving my kid nutrition advice.

kyleesmom
07-14-2008, 01:35 AM
We visited an ear-throat specialist:

Me: Doctor, I would like to point out that Nephele has T1 diabetes.
Doc: Oh. Does she take something for it? (!!!!)
Me: Yeah, aspirin

Oh my gosh, that is hilarious. What did the doctor say to that?

Mama Belle
07-14-2008, 01:38 AM
we visited an ear-throat specialist:

me: Doctor, i would like to point out that nephele has t1 diabetes.
doc: Oh. Does she take something for it? (!!!!)
me: Yeah, aspirin.



hilarious!! :d

bgallini
07-14-2008, 01:42 AM
We visited an ear-throat specialist:

Me: Doctor, I would like to point out that Nephele has T1 diabetes.
Doc: Oh. Does she take something for it? (!!!!)
Me: Yeah, aspirin.

A formerly dear relative:

Aunt: Maybe its God's way of letting you know that you should take Nephele to church more often.
Me: If the deity you believe in were such a petty and vindictive character, I would like to have nothing to do with him/her!

LOL!!! Did you really respond that way??? I hope so....for both of them.

DylansMum
07-14-2008, 06:02 AM
hmm I have a few comments that were said to me like :

'Dylan really needs to get over diabetes, its not like he has Aids or anything like that'

'does Dylan know how lucky he is compared to other children who have cancer, brain tumours etc'.....(wanted that person to choke on his f****coffee:))

'so he will grow out of it right'

bunch of tossers really who make comments like that. No matter how much you tell them, they still can't get it through their thick heads.

:)

deafmack
07-14-2008, 07:15 AM
Today when my mother told me there was no birthday cake because I have Diabetes and so she got me a pound of cherries instead because cherries have carbs in them. :eek:

Mom2rh
07-14-2008, 10:12 AM
Right after dx'd someone asked me if he could control it with diet...I said "Yeah, if he doesn't eat." But I felt bad because they weren't mean spirited about it.

Dh's cousin (we see him maybe once a year) so this was several months after dx, told us a story about a friend of his who had D who had his leg amputated. Right in front of Ryan. :eek: Thank you very much. He realized that was stupid and apologized. But then later, he told us that our karma together, dh's, mine and Ryan's was why he was dx'd. :mad: Yeah...stupid.

Lisa P.
07-14-2008, 10:38 AM
Right after dx'd someone asked me if he could control it with diet...I said "Yeah, if he doesn't eat." But I felt bad because they weren't mean spirited about it.



That's the best response ever -- I'm sure you said it with a smile and a wink!

Mom2Boys
07-14-2008, 11:27 AM
Actually Luke's pediatrician (not his endo) was probably the worst so far. I asked him about life expectancy for a child Luke's age and he proceeded to tell me about his 2 cousins that have had Type 1 since they were 12 and 13 years old. One cousin is in her early 50s and nearly blind and had quadruple bypass surgery has a stent in her heart. The other is in his mid 50s and has had a stroke, bypass surgery too and several other diabetes complications, but they're both still alive and he anticipates they still have few years left in them.

Oh thank you, that's very reassuring!! Did he really think that would make us feel better?

Lee
07-14-2008, 11:32 AM
Our dumbest diabetes comment actually was our diagnosis by a yound PA at the pedi's office. I had NO IDEA it was D - I thought, Kidney infection!

We do all the tests, and I am sitting there playing name that something or other with my two kids, and she walks in, all perky and smiling and says - yep - it is diabetes...I swear, she even giggled!

I still can't believe that she didn't take me outside and tell me and let me get my s@#$t together before facing my children. The lead Pedi came and chewed her out about it - but I switched practices after that!

ADHDiabetic Mom
07-14-2008, 11:34 AM
Actually Luke's pediatrician (not his endo) was probably the worst so far. I asked him about life expectancy for a child Luke's age and he proceeded to tell me about his 2 cousins that have had Type 1 since they were 12 and 13 years old. One cousin is in her early 50s and nearly blind and had quadruple bypass surgery has a stent in her heart. The other is in his mid 50s and has had a stroke, bypass surgery too and several other diabetes complications, but they're both still alive and he anticipates they still have few years left in them.

Oh thank you, that's very reassuring!! Did he really think that would make us feel better?

Oh, my. Not only is that insensitive, it's useless information. The treatment is so much better today than it was 40 years ago that comparing a newly dxd child's prognosis to that of a 50yo is comparing apples to oranges.

AlisonKS
07-14-2008, 11:39 AM
Oh, my. Not only is that insensitive, it's useless information. The treatment is so much better today than it was 40 years ago that comparing a newly dxd child's prognosis to that of a 50yo is comparing apples to oranges.

so true! My grandpa talks about what they had for my aunt-urine tests instead of meters-they would never know when a low was coming on until she had a seizure or got violent, they had to reuse a needle and boil and sharpen it, had to drive across the country for doctors appt's-it was horrible. I know we shared pictures of what our kids looked like days before diagnosis, well in most of my aunt's pictures she does look like that :(

brendansmom
07-14-2008, 05:39 PM
It has been three years since Brendan was diagnosed. There have been several stupid and insensitive comments made from strangers, friends and family. My father in law told us stories about how he knew people that had amputations from diabetes and also people that died early from diabetes. He lectured my son about his sugars so he wouldn't have to have any amputations in the future. I was horrified and Brendan was upset about it. I should have said something but didn't. I just told Brendan afterwards to disregard everything grandpa said.

Then there was the comment from one of Brendan's friends "I would think because Brendan has diabetes that he can't have any carbs or sugar ever. I am trying to lose weight and I can't have any carbs". I just told his friend Brendan can have carbs and sugar and if he goes low at his house, he needs that stuff if the glucose tabs don't work. Brendan doesn't go over there that much and he has yet to spend the night over there.

There was another comment by one of the mom's in my daughter's class "My Uncle has type 2 diabetes and it is worse than your son's type 1 diabetes because my uncle has to have more than shot a day. Gestational diabetes also runs in our family and that is worse than your son's diabetes also". I never asked her opinion. Katie's preschool teacher just asked how Brendan was feeling because he had a few sick days around her class sessions so we couldn't attend her preschool class those days. I should have told the mom off. I tried to explain that Brendan's pancreas does not work but she wouldn't listen. She was a know it all. Thankfully, school is out and her daughter is going to a different school than my daughter.

Then I don't remember exactly but every time we get together with family and Brendan's blood sugars are high, they assume it is always due to him sneaking candy. Brendan has never been a big candy eater since sweets made him feel ill ever since he was little. He does eat it in moderation but not often. I will try to explain the blood sugar may be higher due to his pump site failing, stress, hormones, etc and they just roll their eyes and sigh. This annoys me very much so I just usually keep my distance away from these family members.

Milissa
Mom to Brendan age 11 dx's 1/21/2005 pumping 1/26/06
Mom to katie age 3 born 1/31/2005 epilepsy

kiwimum
07-14-2008, 05:45 PM
About 4 months after dx, a 'friend' told me that she knew EXACTLY how I felt re diabetes, because when her son was constipated....! (I just looked at her with my mouth open - in shock obviously!)

I also had someone tell me a month after dx that at least it wasn't life threatening.

2 weeks after coming home from hospital, I overheard a 'friend' tell her sister that diabetes is our excuse for everything now. (Same friend with the constipated son.) Needless to say we no longer speak due to the above and other things she has said. I don't forgive or forget easily!

Mama Belle
07-14-2008, 05:52 PM
Actually Luke's pediatrician (not his endo) was probably the worst so far. I asked him about life expectancy for a child Luke's age and he proceeded to tell me about his 2 cousins that have had Type 1 since they were 12 and 13 years old. One cousin is in her early 50s and nearly blind and had quadruple bypass surgery has a stent in her heart. The other is in his mid 50s and has had a stroke, bypass surgery too and several other diabetes complications, but they're both still alive and he anticipates they still have few years left in them.

Oh thank you, that's very reassuring!! Did he really think that would make us feel better?

Wow. That almost trumps what my dad was told when he was diagnosed in 1955 (his doctor told him he wouldn't live to see 21). You'd think that medical professionals would have come a bit further in 53 years, huh?

brendansmom
07-14-2008, 06:03 PM
I forgot to mention one more comment. I was having a hard time arranging Brendan's school meeting for his Diabetes care. The principal was giving me the run around. My aunt and Uncle were over at the time and said "It isn't fair to the other kids if Brendan has to have special attention and different rules than the other kids because he only has diabetes and I should think about if we really needed a special meeting or not". I was pretty quiet after that and they left soon after.

Then a friend's relative also made a comment Like "you don't expect the school to take care of him do you? The schools have enough to do and it is just diabetes". I have not seen her for years now.

Milissa
Mom to Brendan age 11 dx'd 1/21/05 pumping 1/26/06
Mom to katie born 1/31/2005 epilepsy

deafmack
07-14-2008, 06:16 PM
There was another comment by one of the mom's in my daughter's class "My Uncle has type 2 diabetes and it is worse than your son's type 1 diabetes because my uncle has to have more than shot a day. Gestational diabetes also runs in our family and that is worse than your son's diabetes also".

She must be related to that woman who told me when my nephew was on life support from a birth injury (2 skull fractures) and having spinal meningitis and e-coli sepsis that she was much worse than my nephew, even though she was standing there in front of me. I have decided some people will just never get it.

skimom
07-14-2008, 06:57 PM
After my son had been diagnosed for about a year, we went over the MIL's house for Christmas dinner - I asked her to just leave on recipes of anything she made or to write down about howmuch of each ingredient she put into certain things. She proudly gave me a list of all the oil and butter she put in things. I said I needed to know about starches and sugars etc - she said oh, I thought you kept track of fat ..

Like, even those dumba**** * that think our kids got T1 from sugar at least know that diabetes has somehting to do with sugars..

When son was in hospital with dx, ran into SIL at hospital - she said "oh" about his diabetes diagnosis then proceeded to whine about the xray she had to wait for as there had been an emergency bump her in the xray waiting room."This hospital has no respect for people and their time" (gag me...the injury was a month old she had just gottne around to doing something about it as it would interfere with her summer plans otherwise)
THe first Christmas with diabetes, I offered to bring an additional dessert (pumpkin pie) so that my son would have a choice of something less rich than MIL annual christmas pudding with its zillion carb count. I tried to explain that Christmas can be hard for a diabetic kid with a sweet tooth. She adamently r efused saying that it would hurt my MIL feelings , to which I responded "and what about my son and his feelings?"

FIL had the crowning comment, the day my son got released from hospital - " I guess his life is ruined now"

My hubby wonders why I don't really have much use for the inlaws