Hi from Texas, New to posting here but not to CWD

[KatieJane'smom]

I'm Kristi, I'm new to posting here but not to CWD. I've gotten on CWD in the past to get information or just to read posts. Just never posted - I'm so shy.
I'm friends with haileysmom, flabbi abi, nobodybutjustme, and Tamhome. I was also scammed by the same dog training org. which shall remain nameless because I don't want to start another deluge of posts from others. We are in the same situation as haileysmom - gave tons of $$, signed no contract, were told we couldn't attend the upcoming class & have no dog to show for it, no refund or transfer of funds. Oh, well, live & learn! Hopefully, justice will prevail. I was extremely impressed with the way CWD members rallied around haileysmom. I know she & her family were so grateful for that.
I decided I need help with some situations that are new to us so I needed to get on here & start posting! My daughter, Katie Jane is my Type 1. She was diagnosed Feb. 13, 2007 and she just turned 13. We still have SO much to learn. She, hopefully, will be getting a pump this summer. We know absolutely nothing about them so I'll be asking tons of questions, I'm sure! We're also having problems with our school district. They've denied her 504 placement for the third time so we are battling that!
Her twin brother is Christopher (also 13). He loves playing tennis and fishing & is in boy scouts. Older brother Matthew (16) is an Eagle Scout & is starting his first job tomorrow. Katie Jane is an artist, actress, storyteller, & long-distance runner. They are all great kiddos & I spend most of my time running the mom's taxi service when I'm not working as an SLP. My hubby, Todd, & I have been married 19 years next week. He's a computer geek and works at Texas Instruments in Dallas.
We live in Denison, Tx. (as far north from Dallas as you can get before you hit the State line into Oklahoma which is the Red River).
That's about it, I'll try not to be so long in my future posts!
Thanks for letting me join!
Kristi

[haileysmom]

good idea for the introductions. i am aimee. mom to one very busy almost three year old. she was diagnosed in april of last year. she is pumping with a ( PRINCESS PINK) animas 2020 pump, and we love love love it. she is great with it. doesn't bother it...and will become fierce if any of her friends from school try to mess with it...she goes to an awesome pre-school and they are so great with her diabetic care there. we live in tuscaloosa, alabama and i am a special education teacher. i teach in a middle school classroom designed for students with significant needs. i've been doing this for two years now.and this spring, i started pursuing my master's in special education. her dad, jacob, is a general manager at a local restaurant, and he loves that. he's been doing that for three years now. we are avid football fans..ROLL TIDE...even hailey. i have posted on here a bit in the past, but i just wanted to be part of the introductions thread! i guess that about covers us!!! :D

[Amy C.]

Welcome! We live about 300 miles south of you in Austin. My son is living with Type 1. He is involved in scouts, but just reached the Life rank.

I don't have personal experience with a 504, since my son attends a Lutheran school, I am familiar with the Texas law that sets some standard of care, one being your child can test anywhere on the school property. Check it out to see if your school is following the law: http://tlo2.tlc.state.tx.us/statutes/docs/HS/content/htm/hs.002.00.000168.00.htm#168.001.00

[KatieJane'smom]

Thank you, Amy (and Hi to Aimee). So if you live Austin then it's probably even hotter where you are. It's 99F here now. Congratulations on your Life Scout! My youngest son is a Star rank and we are really wanting him to get his Eagle before high school. I'm so glad my oldest did that, they just get so much busier when they hit high school. My kids are all in band & my oldest is usually at school from 8:00 to 6:00 with that. Really makes for a long day!

Yes, she has an Individualized Health Plan which was something the school put together to avoid placing her 504 but they don't even follow it. We have been battling with them since diagnosis. They did NOT want her to carry her supplies with her, they still want her to go to the nurse's office when low to test, and they were breaking Texas law by not having other diabetic trained personnel besides the nurse. I firmly insisted that she WOULD carry her supplies with her & test when needed and she would NOT walk down the halls alone when low to go test in the nurse's office. I sicked American Diabetes Assoc. from Dallas on them to make them comply with the law & get other people trained besides the nurse (my daughter is not the only diabetic in this district and they have not abided by Texas law for all these years, apparently). Now I'm battling with them to place her 504 and give her service dog access but they are fighting me every step of the way. I've finally hired attorneys to handle it. I hate doing that but I've been nice & informative for almost 2 years and they are still discriminating and not helping her with her care at all. She's totally on her own & runs herself high at school because she's afraid that no one will help her when she's low! I have to think about the long term affects that's going to have on her & get her back in better control at school.

[Amy C.]

I am sure the other Texas parents on this forum who are having the same sort of problems will chime in. You are not alone in this quest to have the diabetes care you need in the state of Texas. I don't see how schools can go against the law like they doing. I guess they can read, but the interpretation is not what the ordinary person would make of the law, nor is their interpretation what the author of the law intended.

[LizinTX]

Hi, I just wanted to say hello and welcome. Sorry I can't be any help in the school system, we homeschool. But I hope that everything works out for you.

[Scotty's Mum]

Hi Kristi. I wanted to say welcome and I'm pleased to see you've started posting instead of lurking! Unfortunately I'm no good with the school situation as we have a completely different system.