MReinhardt
05-29-2008, 08:29 PM
Well, I have had so many asking about Chell, that I thought that i would just write it out here for everyone. Read if you want.
Chell had surgery again May 7. The drs actually hospitalized her May 6 due to all the other medical issues, diabetes, possible seizures, gastroparesis, and the list can go on and on.
Surgery was only supose to be 3.5 hours long, it ended up being 7 hours, and I was on pins and needles. Drs worked actually the first 3.5 just removing all the scar tissue that was built up. They did state that she body produces scar tissue very well. So needless so say the next 3.5 hours was to repair the ACE/stoma that Chell requires in order for her to have a bowel movement.
Chell does have a tube thats in the ACE channel/stoma so we can give her an enema every evening so she can have that bowel movement. The tube normal is in place for 2-3 weeks, they want the tube in Chell for at least 6 weeks. After the 6 weeks the tube will be removed. Then she has special catheters that will be used so she can do the elimination routine every evening.
The day before surgery she was required to only have clear liquids. Nothing after midnight before surgery. After surgery she/we had to wait until her bowels opened up. Well, thats when it took her body forever. Drs stated that she should only be in the Hospital for 3-5 days after surgery, well she was in there for 15 days after surgery, as her bowels would not open. Every day they would weigh her and have lab come in for blood just to make sure she was not getting malnurished.
After the 7th day and the 5th IV. Drs deceided to put a PIC line in, and go ahead start her on TPN. (due to not allowed to eat or drink-bowels and stomach was closed, if she ate or drank anything, she would just throw it up) Plus Chell had the NG tube to suck out all the gastric juices from the stomach so she would not throw that up also.
Drs fair warned me that her blood sugars would be totally out of control with starting TPN, so I got a hold of the Diabetes Dr on call. We went over all the TPN, and insulin sensitivity and such. All the drs and Endo drs allowed me to do what ever I wanted with the diabetes, and call them if needed. For the most part her blood sugars were great, drs didnt complain at all.
During this time Chell had now lost another 10 lbs. GU Dr and Nurse said that Chell looks so thin on the operating table, and they are willing to help us/me out with what every they can with the gastroparisis issue. Chell was on TPN for 8 days and gained 4 of the 10 lbs back, which I am so thankfull.
Since being home, Chell is so insulin sensitive; I've had to adjust her basal, carb ratio so much its not even funny. I think I got the night time basal set, but its the day time basal that I am stuggling with. Its hard right now to actually do the day time basal check, as Chell needs to eat what she can eat to help her gain some weight back. Changing the basals when she was on TPN and now, oh my her body is going through so much.
Chells sensitivity for insulin was 50, I have slowly changed it to 80, she still dropped on me today when when we had to do a correction. Arrgggg, I hate this.
Chell has now lost a total of 27 lbs in a short amount of time. I am so glad that the GU dr is willing to help with what ever she needs. They are in the process of gathering all of her medical from the different departments GU, GI, and diabetes, so we can take all of the reports, labs, notes, and such to the new gastro dr in St. Louis the end of June.
Chells spirit in the mean time, has been ok. Not the best, but not the worst. My spirit, well....... I'm tired and exhausted. Like usual we take one day at a time and look for the bright days ahead. I am happy that we are home, and have our own beds to sleep in.
Thank You to all who contacted me with concerns about Chell, and Thank You all who prayed.
Chell had surgery again May 7. The drs actually hospitalized her May 6 due to all the other medical issues, diabetes, possible seizures, gastroparesis, and the list can go on and on.
Surgery was only supose to be 3.5 hours long, it ended up being 7 hours, and I was on pins and needles. Drs worked actually the first 3.5 just removing all the scar tissue that was built up. They did state that she body produces scar tissue very well. So needless so say the next 3.5 hours was to repair the ACE/stoma that Chell requires in order for her to have a bowel movement.
Chell does have a tube thats in the ACE channel/stoma so we can give her an enema every evening so she can have that bowel movement. The tube normal is in place for 2-3 weeks, they want the tube in Chell for at least 6 weeks. After the 6 weeks the tube will be removed. Then she has special catheters that will be used so she can do the elimination routine every evening.
The day before surgery she was required to only have clear liquids. Nothing after midnight before surgery. After surgery she/we had to wait until her bowels opened up. Well, thats when it took her body forever. Drs stated that she should only be in the Hospital for 3-5 days after surgery, well she was in there for 15 days after surgery, as her bowels would not open. Every day they would weigh her and have lab come in for blood just to make sure she was not getting malnurished.
After the 7th day and the 5th IV. Drs deceided to put a PIC line in, and go ahead start her on TPN. (due to not allowed to eat or drink-bowels and stomach was closed, if she ate or drank anything, she would just throw it up) Plus Chell had the NG tube to suck out all the gastric juices from the stomach so she would not throw that up also.
Drs fair warned me that her blood sugars would be totally out of control with starting TPN, so I got a hold of the Diabetes Dr on call. We went over all the TPN, and insulin sensitivity and such. All the drs and Endo drs allowed me to do what ever I wanted with the diabetes, and call them if needed. For the most part her blood sugars were great, drs didnt complain at all.
During this time Chell had now lost another 10 lbs. GU Dr and Nurse said that Chell looks so thin on the operating table, and they are willing to help us/me out with what every they can with the gastroparisis issue. Chell was on TPN for 8 days and gained 4 of the 10 lbs back, which I am so thankfull.
Since being home, Chell is so insulin sensitive; I've had to adjust her basal, carb ratio so much its not even funny. I think I got the night time basal set, but its the day time basal that I am stuggling with. Its hard right now to actually do the day time basal check, as Chell needs to eat what she can eat to help her gain some weight back. Changing the basals when she was on TPN and now, oh my her body is going through so much.
Chells sensitivity for insulin was 50, I have slowly changed it to 80, she still dropped on me today when when we had to do a correction. Arrgggg, I hate this.
Chell has now lost a total of 27 lbs in a short amount of time. I am so glad that the GU dr is willing to help with what ever she needs. They are in the process of gathering all of her medical from the different departments GU, GI, and diabetes, so we can take all of the reports, labs, notes, and such to the new gastro dr in St. Louis the end of June.
Chells spirit in the mean time, has been ok. Not the best, but not the worst. My spirit, well....... I'm tired and exhausted. Like usual we take one day at a time and look for the bright days ahead. I am happy that we are home, and have our own beds to sleep in.
Thank You to all who contacted me with concerns about Chell, and Thank You all who prayed.