Trial Net Study Results

[Thoover]

I can finally breath now that my son is NEGATIVE for the screening. I know it doesn't mean he will/will not get D, but I am so at ease right now. I started to cry because he was showing alot of signs the past months and now I don't have to worry for him..

Husbands came back negative, I'm still waiting on my letter. :eek:

Just wanted to share some good news that I have been waiting for 4 weeks for..

[Caydens_Mommy]

Tracy, I am sooo glad to hear the news!! That's wonderful.. Try not to worry to much about you not getting your letter, it will come.. Just pretend that i sent it to you and you know how that goes.. lol

[zell828]

That's good news! I don't know how you all go through these tests. I just can't bring myself to do them on my nonD son :(

[etringali]

I seriously need to have the other 2 screened and myself and Scott...... I keep "conveniently" forgetting...... Think I'm scared to find out.

[Thoover]

I seriously need to have the other 2 screened and myself and Scott...... I keep "conveniently" forgetting...... Think I'm scared to find out.

I was the same way I was so scared to do it, and finally I said NOPE lets go. I was waiting patiently and didn't bug the trial net people. They are very nice. I was just so HAPPY to see that letter come in negative. And my letter well If it doesn't show up tomorrow I will have to call.

I also paid ALOT of money to find my biological Mother and Father because of medical history before DD was even diagnosed. I did find both however biological mother isn't that great with giving medical information.

[Thoover]

That's good news! I don't know how you all go through these tests. I just can't bring myself to do them on my nonD son :(

When you really know the signs now and see them in the Non D child its a wake up call. Besides me checking his finger having him pee on the sticks I coudln't put him through that anymore. I sucked it up cried alot and did it.. And we ALL got tested. The hardest part is waiting 4-6 weeks for the results.

[ADHDiabetic Mom]

That's good news! I don't know how you all go through these tests. I just can't bring myself to do them on my nonD son :(

I think for some of us, the known is less scary than the unknown. I know that I'm more comfortable knowing EXACTLY which antibodies my non-D son has, EXACTLY what their levels are, and EXACTLY how much they have changed (or not) in the past six months. I'm more comfortable knowing that his chances of developing D right now are less than or equal to 25% than I am to just know that he might develop D someday because his brother has it.

Of course, everyone is different!

[Tresstonsmom]

Glad to hear you got good news back...I'm praying yours come's back just as good!!!!:cwds:

[TracieandJim]

Thats terrific news! I still don't have any regrets learning that my oldest has 2 antibodies. Now I feel like I've prepared for it whether it happens or not. Interestingly enough I found out that my D child has 3 antibodies; micro insulin, GAD65 and IA2 and my oldest non-D child has; ICA512 (same as IA2?) and micro insulin. This doesn't mean anything really but I like to over analyze so .. in a way it helps me I guess. :o

[piratelight]

We did Trial Net and while I was negative, our middle DD was initially positive for GAD 65 and when they retested she was positive for GAD 65 and micro insulin AAI. She goes for further testing the end of June. We are in the camp of knowing more is better than wondering.

[RosemaryCinNJ]

Great news!! Is this something all parents should consider for their Non-D children or is it a matter of personal preference? Meaning some prefer to know and others do not, and will just be watchful of their Non-D child (ren)...did I just answer my own question?lol..

[hawkeyegirl]

I think it's a matter of personal preference.

If the test conclusively showed whether your child would get D or not, I'd do it. But it doesn't. Even if your child doesn't have the antibodies today, they could show up tomorrow. And similarly, even if your child has some of the antibodies, it doesn't mean they will get D.

In a nutshell, getting a negative test wouldn't make me worry less, and knowing that she had antibodies would make me worry more. Therefore, I'm better off not testing her.

[Thoover]

Its the matter of also if you see your child have D symptoms you kinda go.. Uhhh ohh.. Get the BG check his/her finger and read the reading. When it comes back kinda low or kinda high. DD endo said to do the trial net because Nickolas my 5 year old had ALL the signs. I had to pay that kid alot of dollar bills to check his finger.. I think about 20 bucks now..LOL.. It give you a bit of relief it really does for me it did. It doesn't mean he will/wont get D, but right now I know he doesnt now.

[Thoover]

I can finally breath now that my son is NEGATIVE for the screening. I know it doesn't mean he will/will not get D, but I am so at ease right now. I started to cry because he was showing alot of signs the past months and now I don't have to worry for him..

Husbands came back negative, I'm still waiting on my letter. :eek:

Just wanted to share some good news that I have been waiting for 4 weeks for..


So to update everyone I never got a letter so I called Trial net and my GAD65 came back douled the normal amount. The other's haven't come back as of today. They want me to retake the Gad65 again if the results come back again elevated then I will do the Glucose Tolerence test..
I felt so bad but thankfull if anyone had to have the antibody that it wouldn't be my son. I started crying and ALL I could say to DD was Im so sorry mommy gave this horrible disease. She hugged me and said "mommy god wouldn't give us something we can handle or take care of". How sweet of her. But Im also angry, sad because I paid alot of money to find my biological parents and found both. BM (biological mother) didn't reveal alot of medical history, BF (biological Father) revealed everything as I was given away without his concent. He never knew I even existed. So do I send her a letter that I want ALL my medical history written down.. send her a medical form to check yes or now?? I think its what I have to do. She wanted to have lunch with me and I said its not like she can have her cake and eat it too with no one knowing about me she would be looking over her shoulder.. None of her side knows I exsist, and I can blow that out of the water at any time as I have 3 1/2 siblings. BF has already said something to her BIL not knowing it was her BIL.. lol
Thanks for letting me VENT on you all.. But need to know should I send the letter or leave it alone?

[TracieandJim]

Im so sorry. I think you should wait and digest this for a few days. Let it sink in an weigh your options. Dont make the drama any harsher than it already is just yet. Perhaps you will decide later that you want to know everything can. Then later decide about the rest of the drama. Its way too much to handle all AT once. Diabetes is a huge emotional strain as it is. Its not anyones fault that D rears its ugly head. Take your time.

[RosemaryCinNJ]

Tracy....I remember how worried you were in your other post!!! So glad to hear the good news!! :)