At diagnosis what was your child's bg?

[Dylan'sMom]

Im just wondering. When your child was dx'd what was their bg? Dylan's was 990.

[Sandy's mom]

1/6/08 @ 612

[yeswe'rebothD]

I know your title says "your child" but here's mine and Grace's stats:

mine: 880 (this was at admittance into the hospital, NOT at the quack Dr. who a few weeks earlier dx me with a fasting of 183, but did NOTHING, told my dad & step-mom I wasn't "bad enough" yet to be treated with insulin! :eek:)

Grace 453 and no ketones. She'd really only been peeing & guzzling water that afternoon, so of course I knew what was going on. I checked her w/my meter, which read "HI," but at the ER it had gone down a little.

[twodoor2]

598 - I was so stupid when I asked the nurse, "is that bad?"

[khannen]

All I know was that she was over 600. That was the highest the meter read. The exact number is apparently in her blood work results, but I don't think I WANT to know how bad she was.. how close we were to danger zone

[yeswe'rebothD]

All I know was that she was over 600. That was the highest the meter read. The exact number is apparently in her blood work results, but I don't think I WANT to know how bad she was.. how close we were to danger zone

It won't matter to you now what her # was then, but there is no magic number that is the "danger zone." It's different for everyone. When I was in the hospital I heard many different nurses talk about some kids came in with sugars over 1500, walking and talking normally, and some with 800's or so that were comatose.

[Treysmom]

Thankfully only 252. We were at it for months before having one over 400.

[lynn]

Nathan's was 299 at the ped. office. The lab said 305.

[Noel]

Aidan was 586 then 1/2 later 540.

Keith was over 1000.

[Twinklet]

497. The Pediatrician called me while I was driving home after dropping Emily back at school after her appointment and labs. I had to pull over to cry and try to compose myself before I turned around to go back to the school and take her to the Endo's office. That was 2 years ago this Saturday!

Edited to add: A1C was 13.2. I think she had a very slow decline.

[Twinklet]

It won't matter to you now what her # was then, but there is no magic number that is the "danger zone." It's different for everyone. When I was in the hospital I heard many different nurses talk about some kids came in with sugars over 1500, walking and talking normally, and some with 800's or so that were comatose.

That would probably have to do with the level of ketones and subsequent electrolyte imbalances from the high BG.

Emily didn't have ketones, so wasn't hospitalized. She met another girl her age in the Endo office the day after her diagnosis, and that child was 450 with ketones and was in the ICU.

[Judy&Alli]

Alli was 490 (no ketones) that I know of. She walked around that hospital like she owned the place. She loved the hospital:confused:
Judy:)

[Missouri Mom]

Morgan was 387, no ketones that I remember.

[mathcat]

Jacob was at 682 and in DKA at age 3 1/2. It took two days to get him out of PICU.

[buggle]

Brendan was "HI" on the rapid test at the pediatrician's office. So, she did a blood draw and sent us to the diabetes center about an hour away. They faxed the results to the endo and it was over 600.

By the time they checked at the diabetes center, he was down in the 300s. He'd been drinking and peeing like mad. No ketones. We spent the afternoon, shell-shocked and learning about glucose meters and shots. They did the Novolog fairly soon after we arrived and did a Lantus injection before we left, so we only had to deal with a couple of Novolog shots on our own that first day. Then, we were back the next morning for all-day training. I'm glad he wasn't sick enough to go the hospital. I still cry when I read about the kids being hospitalized -- especially those who had to transported by ambulance or flight for life. This is a terribly frightening disease.

[Bsbllmom]

Christian was 355 fasting 14 hours after his last meal and had moderate ketones.:eek: He was in the hospital for 6 days.:(

[OSUMom]

Dean was over 1,000 somewhere I don't know the specific number. He was in DKA.

[bgallini]

Alex was at 501, not in dka. I don't know if there were ketones. He seemed fine to us and we were surprised the Dr wanted him in the ER immediately.

[coni1523]

Jacob was 1056. I remember it like it was yesturday. He can even tell you what he was. I was so scared. He was DKA to. He was walking and talking. He just was sleepy all the time. He walked into the hospital's ER. I thought he had a bad stomach virus. That is what I was told 1 day before by his doctor. "Whatever" I changed doctors after that.

Connie

[thebestnest5]

Liv was 500 something-they never gave me the exact number.
She also had high ketones. The Ped commented on how bright and alert Liv was for her levels. The Ped and CDE kept asking us how we caught it "early".:confused: I didn't think we caught it early enough.:o

Liv dx anniversary date is tomorrow. May 15.:cwds:

[Jensmami]

598 - I was so stupid when I asked the nurse, "is that bad?"

Jenny's was in the 600's and in DKA. I remember when they told me about the lows and what could happen with them, I was thinking how glad I was that Jenny has the high kind of diabetes:eek::rolleyes: Talking about being stupid:p

[rachabetic]

I think I was something like 475. I remember they offered me a wheelchair when I got to the hospital, and I looked at them like they were crazy because I was fine!:D I walked in, and I never felt 'sick'.

[hrtmom3]

After collapsing on the floor on the way out the door to the ER, we called for an ambulance. The first ambulance had to stop in the next town over to pick up a paramedic, and then off to the ER. I will never forget the look on the doctors face when he told me he was a very sick little boy. (bs was 1248). He was then put into the critical care unit to be transported to another hospital. With all that we had to hear and learn at the hospital, I believe part of me was just numb and I didn't realize how close to loosing our boy we were until we were back home from the hospital a week later.

[Christian's Mommy]

Christian was 789

[RaeFlower4]

Iris' was 593 with large ketones. My mom is an RN and she suspected it when Iris at 15 Months drank a large glass of water in a matter of seconds. It was on April Fools day....no joke.

[jscat]

Cameron's first reading was HI in the ER, so over 33 (594), his blood work that came back several hours later was 43.3 (779) although he was already dx'd by then. He was spilling massive amounts of keytones and was in DKA.

[Heather(CA)]

I don't know the exact number, I wasn't there...I was on my honeymoon, I just know that it was in the 300's...

[sam1nat2]

440, he had lunch on the way to the peds office.
They sent me to the car to check if he had had a sugar free juice box like I insisted he had. I called dh to ask if that was a bad number---fil is D.

No ketones and feeling fine. By the time he got to the endos he was 300 and was given insulin, an hour later he was 50.

Honestly I never realized how lucky we were until I started reading the boards and saw how sick some of the kiddos were.

[Pavlos]

Nephele was 278, no ketones. It was 6 months +1 day ago, seems like an eternity...

[StillMamamia]

It was in the mid 900s, don't remember the exact number. DKA and severely dehydrated too.

[climbn_mama]

DD was 525, DKA....2 days in PICU....one month ago.

[amber3cs]

Cam was 43 ( 774). Had ketones but was walking and talking.
They were quite amazed when they saw him at the assessment unit how well he looked. We were kept in for 4 days but he didn't need hydrating.

[jwk's mom]

J was 1520!! I was told at our local hospital that they had never seen at BG that high in anyone. I was terrified.

[Skyefire]

We tested Phoenix at home he was 589 (32.5) washed his hands retested and he was 540 (30). We drove him to the ER pumped him full of water incase of Keytones and he 498 (27.7) showing slight keytones. They said it was a good thing that I had been giving him water to drink for 2 days before bring him in, because he was driving me so crazy for drinks I slowed down on Fruit Juice. They said it would have been worse.

Aiden was so high when he was Dx'd that even the blood test at the hospital, could not read is BG and had to wait over 2 hours after putting him on IV to have it show up in the blood test. He was in Severe dka, it was really bad.

[RosemaryCinNJ]

Amanda was in the upper 900's and in DKA..(misdiagnosed the night before the ER actually sent her home!!) Grrrr!!!! She spent almost a week in Pedi ICU...Worst week of my life

[frizzyrazzy]

Ian was 1033 at dx. And in full blown dka I remember the nurse showing me these readouts which showed all his blood chemistry and explaining what dka was, and all I can remember saying is "Is this bad"?

2 days in picu and 3 more in the hospital, and a perfectly fine little boy came out, happy and healthy as ever.

[OSUMom]

I can remember saying is "Is this bad"?


Isn't it amazing the things we know now that we didn't know then? Dean seemed fine in the ER (thin but okay), but oh he was so not fine.

[andeefig]

12 months old: 792, DKA, 3 days PICU, 10 more in hospital (because of pump start from the begining and Roto Virus :p)

[frizzyrazzy]

Isn't it amazing the things we know now that we didn't know then? Dean seemed fine in the ER (thin but okay), but oh he was so not fine.
Oh I know! Ian walked into the ER on his own and quickly went in and out of consciousness after and all I could think to say to someone (a nurse maybe) was "but we really LOVE pasta". lol

[liasmommy2000]

Lia's was 237 in the ER. But the doctor had ordered blood tests two days before at the lab and those were 460 and when they got those back we were called and sent to the hospital.

They told me 460 on the phone and I had no clue what that meant. 50, 237, 460....none of it meant a thing to me who had never given blood sugar a moments thought....

ETA her A1C was 12 something. What were your kids A1C's?

[OSUMom]

Oh I know! Ian walked into the ER on his own and quickly went in and out of consciousness after and all I could think to say to someone (a nurse maybe) was "but we really LOVE pasta". lol

We knew Dean had diabetes going into the ER - he was diagnosed hours earlier at the family doctor and the family doctor sent us home (he was waiting to talk to an endo) - no insulin no information no anything. Dean went to work!! :confused: The doctor then called and sent us to the ER.... I told Dean you better eat something we could be in the ER waiting room awhile so we stopped and he got something to eat first. I knew nothing!!! :o

[Charmed7]

my memory is getting more and more fuzzy, it was either 924 or 927

Oh, and when I called the babysitter to tell her I was taking him to the ER she said, and I quote, "I gave him a banana and he fell asleep." I will never forget that.

Before diagnosis, he was always thirsty and I kept giving him gatorade and apple juice and soda....ugh. To think about it now just makes me sick.

Charmed

[Mary Lou]

Brian was 1200. Full DKA. I remember the paramedic having me smell Brian's breath because he said, "this is a smell you need to know and remember."

Andrew was just "HI", we brought him down at home and met our endo the next day in Boston. After we realized what was going on with him and Dr. Quinn figured out how much insulin to give him, he was 500 within three hours of that initial injection.

>>SIGH<<

Sad times.

But then I look at them now and they are so healthy. Thank God for modern medicine, huh?

[Mom2Deacon]

Deacon was 282 at 9 p.m. in the ER. He started to rise during the night and the highest I saw then was 354.

--Sara

[chocoholicsc]

Christopher's was only 384 but he was in full blown DKA:(
He had just begun to stop responding to us and his eyes were rolling to rhe back of his head(by far, the scariest experience of my life). All the while an ER doctor is telling me he just has a 'bad case of constipation'!!:mad:
I'm like, "Is there anyone else who can help us, this is a lot MORE than constipation!"
We spent 4 days in the picu....:(

Candy

[Mom2Deacon]

598 - I was so stupid when I asked the nurse, "is that bad?"

I remember being really concerned that Deacon was 282 and rising into the 300's during that night. I thought those were really high numbers and I knew about diabetes. But the doctor and nurses kept telling me that I caught it early and those numbers were not bad compared to what they normally see.

--Sara

[hmmmcormick]

I don't know the exact number I just remember the dr in the e.r. telling me it was over 1,000. I knew nothing about what it should be. I didn't even ask until the next day. I think I was in shock, diabetes on top of everything else?! There was so much hustle and bustle to get him to the PICU, he was also severely dehydrated, no ketones. The next day I asked what was a normal b.g. and they told me around 100 :eek:

[Pauji5]

Kendall was 850, but thankfully, no ketones.

[Aidan'sMom]

Aidan was 790. DKA of course. Four days in the PICU.

[frizzyrazzy]

ETA her A1C was 12 something. What were your kids A1C's?

Ian was only mid 9's. I don't remember exactly (9.5 or 9.7 maybe) but I remember it wasn't that bad.

[danismom79]

Just under 500, with ketones. I didn't realize how bad that was until my mother gasped over the phone when I told her. We went from an urgent care appointment to being sent to the ER and admitted that night. Now that I think about it, no one ever specifically said "your daughter has diabetes." But they had written diabetic on her menu form.

[lotsoftots]

Samantha was 1250..she was fine the night before then started getting sick (we thought she had the flu like her friends) in the morning she could hardly move so I took her to the er..it took them 5 hours to figure out what was wrong with her...transported her to a different hosp where the dr told me she had diabetes...could of knocked me over right then and there..I glad at the time I didnt know 1250 was a bad thing..it was so nice being in the dark at that time if I would have known I would have freaked.

[khannen]

That would probably have to do with the level of ketones and subsequent electrolyte imbalances from the high BG.

Emily didn't have ketones, so wasn't hospitalized. She met another girl her age in the Endo office the day after her diagnosis, and that child was 450 with ketones and was in the ICU.

Yeah, my danger zone comment earlier was meant more specifically to shealyn. She gets ketones big and bad... way too easily for my liking. The only number I remember from all the results I was shown at dx was seeing that ketones were "greater than 1000% what they should be". Heck.. I didn't even know what a ketone WAS, but 1000% higher HAD to be bad!! I asked the dr what that meant and he said it meant we were heading straight to the ER. Ugh....

[Brensdad]

Emma's BG was 699. The pedi took one look at her, sitting on the table smiling and clapping, and said "I'd bet my practice this kid isn't type 1."

[Thoover]

Brittney's BG was over 950, DKA and holding onto her life, 2 days in PICU, and 3 days in a normal room.

[Kaylee's Mommy]

Kaylee was 321 by lab results and no ketones.. she never had a hospital stay at dx.. we had that horrible hospital stay back in march.. her A1c was 6.2 a week or so after dx..

[zell828]

400 with ketones.

[StillMamamia]

A1c at dx was 13. Spent one week in the hospital.

[Jacob'sDad]

I don't know.
I was so clueless, it was just a meaningless number to me. I didn't know what it meant. What's really sad is that my dad was type 1 and I STILL didn't know what normal BG was.:confused::rolleyes:

[Lee]

I don't know.
I was so clueless, it was just a meaningless number to me. I didn't know what it meant. What's really sad is that my dad was type 1 and I STILL didn't know what normal BG was.:confused::rolleyes:

Same here - only it is a stepdad - but no clue - I don't think the dumb PA even told me...

[michelleissweet]

Aaron was 330 and rushed to chapel hill by ambulance. If i knew then what i know today we would have just driven ourselves.

[momandwifeoftype1s]

Connor was in the upper 400's (I don't remember the exact #). We tested him at home with Brian's meter. Connor had wet the bed twice before 11:00 p.m. that night, so that was our big alert that he might have diabetes. We called the doctor, who sent us to the ER. Connor acted just fine at the hospital - not sick at all. He loved getting to walk down to the cafeteria with me for a popcorn snack in the evening. We were very lucky to catch his diabetes before DKA.

When Brian was diagnosed 20 years ago, he had to be carried into the ER. He had lost 50 pounds and was very, very sick.

[lotsoftots]

I don't know.
I was so clueless, it was just a meaningless number to me. I didn't know what it meant. What's really sad is that my dad was type 1 and I STILL didn't know what normal BG was.:confused::rolleyes:
I with you there!!! My mom and sister are both type 1 and I had no ideal when the Dr said ketones I didnt know what that was...and when my mom would talk and tell me her numbers before I would just tune it out didnt mean to it just happened.

[mckynziesmom]

McKynzie was 1127. Thought she was sick with a stomach virus. Had to be airflighted to a hospital with PICU. Was in PICU for 2 1/2 days and a regular room for 3 days.

[KeltonsMom]

I can't remember the exact number but Kelton was in the 900's and in DKA, very sick little boy, I had to carry him in to the ER.

[GabriellasMom]

Gabriella was 470

[Kaileen]

530. Deirdre had been going to the bathroom a lot, and even though my grandma and mom were both T2, I never connected the two. I just thought it was because she was an active young lady and drank a lot of water. But on a Saturday night, I was playing with my new BG meter (I run low, usually around 70-90). I checked mine, then my husband's. I called over to Deirdre and said, "Hey! Let's test your blood sugar!"

I just about passed out.

That Monday, we took her to her regular doctor. She took her BG, and it was still 530. She tested it again with another meter. Same thing. She sent her straight to a pedes endo. She was at home that night, on her first insulin shot.

[etringali]

Alex was 400+ and rising when we got to the ER. He had ketones, but was not in DKA.

[tuckerk]

Caitilin was 1500!!!!!:eek:with greater than 1,000 in ketones (by urine)

[mom2one]

Cooper was around 600 and was in DKA. Spent time in the PICU, then regular floor.

[Jboudo01]

My daughter was 480 - acting very normal.

[caspi]

We knew Dean had diabetes going into the ER - he was diagnosed hours earlier at the family doctor and the family doctor sent us home (he was waiting to talk to an endo) - no insulin no information no anything. Dean went to work!! :confused: The doctor then called and sent us to the ER.... I told Dean you better eat something we could be in the ER waiting room awhile so we stopped and he got something to eat first. I knew nothing!!! :o


We had a similar experience - we went to our family doctor, they told us he has diabetes and needed to go to UVA (which is 120 miles from here) and sent us on our way. We stopped at McDonald's and bought him a McFLURRY!! Look up the carb count on THAT one! We were completely and utterly clueless.

As for Cameron's # -- it was in the 700's. He was in DKA and spent 2 nights in PICU and 2 more in the hospital.

[TerpSteph]

Matt was 700 with large keytones. We made an urgent care appointment because we knew something was up and we were immediately sent to Childrens Hospital in DC. They were amazed that he was feeling as good as he was.

My husband and I haven't stopped kicking ourselves though. We had just spent three days touring NYC. We walked for miles and it's amazing he didn't pass out. When we looked at our pictures, we both said "Look at him! What were we thinking?!"

[Mama2H]

I do not remember now. Hailey fell into a coma on the way to the ER. I remember her pedi saying she had never seen a child with blood so acidic and that we needed to be very careful because we could lose her :( I remember them talking about taking 2 days to get her bgs down so her brain wouldn't swell and kill her. I also remember that she was so dehydrated that I would lay next to her in her hospital bed and squeeze a wet rag on her lips and put lotion all over her. Hailey was definatly in DKA and we were very lucky that she did not die. I still have pangs of guilt, I know I shouldn't but I think I always will. A week later we went home to begin trying to find the "new normal".

[Jencaz23]

Camren was 535 with moderate keytones... He was acting perfectly normal loved the hospital stay we were there 4 days.

[dmjrn]

The ER doc said Macy was over 1000. I still can't believe she wasn't in DKA. We still spent 4 days in the hospital though.

[caspi]

I still have pangs of guilt, I know I shouldn't but I think I always will. A week later we went home to begin trying to find the "new normal".


I have the guilt as well - the weight loss, the "just not feeling right" one day, then fine the next, the water drinking, the peeing. I mean, what more did I need -- the Goodyear Blimp go by with YOUR SON HAS DIABETES! written on it?! I will always feel guilty that I didn't pick up on it sooner.....

[Mama2H]

I have the guilt as well - the weight loss, the "just not feeling right" one day, then fine the next, the water drinking, the peeing. I mean, what more did I need -- the Goodyear Blimp go by with YOUR SON HAS DIABETES! written on it?! I will always feel guilty that I didn't pick up on it sooner.....

(((((hugs))))) I so know what you mean. It is almost impossible to not feel the guilt. Honestly, I should have seen it. We cannot change it now but I can vouch that you are an awesome mom and you are taking great care of your son. I wish I could give you a real hug right now!

[momtojess]

[QUOTE=Mama2H;171827 I remember her pedi saying she had never seen a child with blood so acidic and that we needed to be very careful because we could lose her :( I remember them talking about taking 2 days to get her bgs down so her brain wouldn't swell and kill her. .[/QUOTE]

They said this about Jessi too.. I had taken her to the Ped friday morning, they said it was a virus she would be better by monday.. Saturday night, i carried my limp 11 mth old into the ER. It only took about 30 mins to tell us it was D.. I kept asking if she would be okay, and they said they hoped so, but wouldnt tell us straight up yes. I was so scared. My mom was with me, dh was 13 hrs away in MS.. He had worked all that day, so he had to sleep before he could come home. He got there about 24 hrs later. 2 days in nicu, and 3 days on the D floor

[alismom]

Allison was at 673, A1C was 11.7. She was in the hospital for less than 24 hours.

[Ginger9909]

She was in the late 900's and in DKA. Brought her to the ER in the middle of the night as her breathing was very labored. Had we waited until the morning when we had a doctors appt, she may not have made it from what i was told by the doctor, we were very lucky we brought her in when we did. She was in & out of consciousness but mainly sleeping most of the time the last 2 days before diagnosis (i thought she had the flu). I knew something wasnt right and should have taken her straight to the doctor days before when I had doubts.
When she was at the hospital they were unsure what was going to happen and worried that her brain had swelled. Luckily the next day things were better and that didnt happen as she regained consciouness. Looking back I think how stupid I was the signs were all there (extreme thirst for weeks leading up to it, soaking diapers, sleeping constantly at the end) and i feel horrible about dragging her on vacation two weeks prior to that as she was drinking like crazy and I had no clue.

[ScottB]

Justin was at 730, couldn't drink enough water and all he wanted to do besides drink water was lay down. The ER at first though he had gotten drunk and was suffering a bad hangover or he had mononucleosis.

[caspi]

(((((hugs))))) I so know what you mean. It is almost impossible to not feel the guilt. Honestly, I should have seen it. We cannot change it now but I can vouch that you are an awesome mom and you are taking great care of your son. I wish I could give you a real hug right now!

{{{HUGS****** right back at you! We've been at this together for almost the same length of time so I know you "get it"! :cwds:

[dqmomof3]

Jayden was over 600 - that's all I know. Her "official" number is 575 from the hospital labs, but by the time they drew those, she'd been without food for close to 8 hours. I have no idea what it was before.

And to those who "missed it," try not to beat yourself up. We are pretty sure we "missed it" for the better part of a YEAR :-(.

[ADHDiabetic Mom]

Only 269, but that was after a 13-hour fast. (We knew to do it in the morning.) The A1C was around 12. He never went into DKA.

[BCot]

252, Aic 9.1

[sugarmonkey]

Phillip was 33 (594). I don't know what his a1c was. No dka. He was completely normal. he Loved the hospital. I can't believe now that we walked from the doctors to the hospital (1/2 hour walk) after that number. I didn't have a car, but the doc didn't know that. It was the first day of school for the year, Phillip had 1 day at school then 10 days off, until i could educate his teacher.

[staciebco]

Caleb was 1398 and an A1C of 13. As soon as we got to the hospital, Caleb was saying he was thirsty and they gave him some Apple Juice. :eek:

[Aidan'sMom]

ETA her A1C was 12 something. What were your kids A1C's?

Aidan's A1C was 12.5 at dx. We haven't had one after dx yet, will be coming up in June. Kinda nervous. Feels almost like a test that I am going to be passing or failing!! I hope for a good number!