Adults: Who here is Type 1 (adult onset)

[Nancy in VA]

I know someone on another message board I frequent who was just admitted to the hospital. She had been diagnosed "Type 2" and was on pills and was now told she was Type 1 and is moving to injected insulin.

I know at least one other here experienced something similar - and I've seen conversations about Type 1.5 or LADA diabetes, but don't know enough about it. If you're here, can you give a shout out with a little info

[BrendaK]

That would be me. I was diagnosed through the trialnet study just 10 months ago. Since they already knew that I had super high levels of all of the type 1 antibodies, they did not mess around with a type 1 diagnosis. I myself thought it was 1.5 or lada, but was wrong, it is type 1.

I am in the honeymoon period and am on 10 units of lantus a day. But I need to find an endo (we moved about 6 months ago) because my numbers are slowly but surely creeping up. I feel very fortunate that it was caught SO early. Since I got on lantus very early, then that is probably extending my honeymoon.

Desert-eagle is the other type 1 on this board that was very recently diagnosed.

[Brensdad]

Me too. I was diagnosed as type 2, put on pills, (sound familiar BrendaK?) and then after a week went on insulin. I was actually diagnosed type 1 by my general physician while the quack endo I was seeing had me on 1/2 of a glyburide. :rolleyes:

[KeltonsMom]

I was first diagnosed in November they thought it was type 2, but my primary care doctor wasn't convinced and had me tested for the GAD65 antibody. Once I got the test results back for this I was diagnosed with type 1.

The thing is I had not felt good for over 2 years so there is no telling how long this was coming on and went unnoticed. But now I feel great now that I am on insulin.

[funnygrl]

I was diagnosed at 19. Quack Endo lady diagnosed me and wouldn't put me on anything- pills or otherwise. When I started seeing "HI" on the meter daily I went to non-quack endo who diagnosed me as type 1 and put me on insulin. However, now non-quack endo is considering that I may not be type 1 too, but doesn't want me off insulin. I really have no solid diagnosis at the moment, other than that I'm diabetic and staying on insulin for now, which is really all that matters.

[buggle]

I think this is really strange... my son is at a grade school with about 230 kids or so. He was dx'd 2 weeks ago and he is the only child with T1 in the school. Within the last several weeks, a teacher's assistant in her 30's was dx'd with T1 and a parent with kids at the school who is in his 50's was dx'd with T1.

[hrermgr]

My DH was dxd as type 1 41 years ago at the age of 3 years old. No mixing it up with type 2! He doesn't post but he does "lurk" here!!

[kel4han]

Me too, I was diagnosed 2 years ago at age 28 as "type 2" and put on pills, Actos and Metformin even though my PCP knew my dad was Type 1 at age 32. I was on the "pills" for 3 weeks, no improvement or changes when my blood work came back with GAD antibodies and 1 cpeptide. Then they decided I was type 1......Hmmm, YA THINK! I was 120lbs before diagnosis and 114 at diagnosis :eek:

[sneetch]

I was diagnosed with type 2 at the age of 20. At the age of 26 I was correctly diagnosed with type 1. Here's how that happened. Four months after my second son was born I started to have the classic symptoms of being thirsty all the time, using the bathroom alot and feeling just plain rotten. I knew exactly what that meant because I had gestational diabetes with both my pregnancies and was insulin dependant for the second. So I dusted off my meter and my blood sugar was in the 400's. I went to the doctor and she told me I had type 2 and it was common to develop that after having gestational diabetes. She put me back on insulin because I was still nursing my baby and told me I could go on pills when he was weened. I ended up nursing him for two years, got pregnant again and then nursed my daughter for three. I went back to the doctor after my daughter was weened and put on pills for a month, but was never able to reduce my insulin. It was pretty obvious I needed it. So, for the first time I went to see an endocrinologist. She did blood work for c-peptide and some antibody tests (first time ever having these done) and guess what, they all pointed to type 1. I figure the doctor who diagnosed me only saw that I was a bit overwieght. I hadn't lost all the weight I had gained while being on bed rest for half of my complicated pregnancy. Nor did she consider that both my mother and her brother were diagnosed with type 1 in their 20's. Since then my sister has developed type 1. She was 35 when she was diagnosed.

Karen

[Jamie's mom]

I was also diagnosed in the hospital with type 2.
They gave me insulin and pills.
When I went to see my endo, she told me that I was type 1.
I was 39 years old.
My daughter at 9 years old, was diagnosed 2 years later!

[Noel]

I think this is really strange... my son is at a grade school with about 230 kids or so. He was dx'd 2 weeks ago and he is the only child with T1 in the school. Within the last several weeks, a teacher's assistant in her 30's was dx'd with T1 and a parent with kids at the school who is in his 50's was dx'd with T1.


Similar situation....Aidan is the only elementary student in our district with type 1.....3 schools about 1000 kids....

There are a few in the middle school though that is grade 6-8.

[lilituc]

I have LADA. I caught my diabetes early because I live with someone with Type 1. I took my out-of-range bg readings to my GP, who promptly sent me to an endo. Endo #1 turned out to be a quack, but I wasn't able to get good info about diabetes, so it wasn't clear. He told me things like "you test too much. Stop testing every day" when my bg went through the roof if I ate more than 40g of carbs. He said anything under 300 was "great." He wouldn't put me on medication. I was eating <120g of carbs daily and exercising every day for 2-3 hours for years before diagnosis, and I was underweight. Endo #1 told me to eat 200g a day and exercise 30 minutes three times a week to "fix" my bg and had his dietitian cook me up a weight loss plan. I know he at least heard what I said because all of those things are in the same report.

After a year of that guy, I finally saw the light (while eating 15g of carbs a day to try to keep my bg down) and got a new endo. Surprise! I'm Type 1.