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Ellen
02-05-2008, 02:00 PM
http://www.burtonmail.co.uk/burtonmail-news/displayarticle.asp?id=253967
Burton Mail (http://www.burtonmail.co.uk/) > News (http://www.burtonmail.co.uk/burtonmail-news/) > DIABETIC BOY, 4, IN SCHOOL BAN


DIABETIC BOY, 4, IN SCHOOL BAN

By ADRIAN JENKINS

EDUCATION chiefs are repeatedly barring a four-year-old Burton boy from school because he is diabetic.

Staffordshire County Council has excluded Ellis Edwards, of Foston Avenue, Horninglow, from Castle Park Infant School, in Tutbury Road, on six separate occasions since September, because the nurse who gives him life-saving injections of insulin has herself been off sick.

His mother, Julie, 38, who was previously forced to give up her 20-year banking career to care for her son, has accused education chiefs of 'discrimination' and insisted they are damaging her son's schooling and harming him psychologically.

Instead of banning him whenever the nurse is off, she wants them to cater for Ellis' needs by allowing staff to inject him or letting her visit the school at lunchtime to do it herself.

Ellis needs four injections of insulin a day to ensure the Type One diabetes he was diagnosed with when he was just 21 months old does not kill him by overloading his body with sugar.

Education chiefs refused to provide them but South Staffordshire Primary Care Trust funded a full-time nurse so the youngster had the help he needed when he started school in September.

Ellis was initially forced to wait outside school until the nurse arrived, a situation which changed in October, when his mother agreed to stay with him until the worker turned up.

However, Mrs Edwards' fears were rekindled when the school decided to bar the child whenever the nurse was off sick - a situation which has occurred on six days in five months.

The school says it will only allow Ellis to stay at school if his mother remains on site throughout the six-hour day and administers the crucial lunchtime injection of insulin.

Mrs Edwards insists she is unable to meet the demand because she is having to juggle the demands of caring for her other child, Natalia, two, with retraining for a job in child care.

The former Lloyds TSB team leader, who is now on benefits, claims the school's stance is particularly unfair because it not only has a member of staff with diabetes, but helps care for another diabetic child and allows her mother to visit at lunchtimes to give her insulin.

In the meantime, she says Ellis is not only missing out on the educational and social benefits of school, but losing his enthusiasm, becoming more 'clingy' and needing more assurance.

Mrs Edwards said: "I feel angry they can do such a thing to a little boy who can't make it stop and has done nothing in his life to deserve such awful treatment.

"With his health problems he's got enough in his life to deal with without this. At the end of the day it's discrimination and is stripping him of his confidence.

"I want them to stop excluding him and treat him like other children. I am not asking for anything extra, I'm asking for what everyone else takes for granted."

A county council spokesman said Ellis' safety and well being were 'of paramount importance' to the school.

She said: "A PCT-funded nurse has been brought in to give Ellis one-to-one care while he is in school. Two other nurses have also been trained to monitor and care for his complex medical needs.

"Unfortunately, there have been occasions in which the trained personnel have not been available for various reasons. Ellis' mother was invited into school so that she could provide emergency cover when the trained team was unavailable but, unfortunately, she was unable to attend. In these instances, for his safety and well being, Ellis' mum was asked to keep him at home."

The spokesman said the school and PCT were working closely together to ensure repeat forced absences were kept to a minimum.

Ellen
02-26-2008, 09:08 PM
http://www.burtonmail.co.uk/burtonmail-news/displayarticle.asp?id=259259

Massive response over Ellis's story

by ADRIAN JENKINS

THE MAIL has been inundated with letters supporting a mother whose four-year-old son has been repeatedly barred from a Burton school because he is diabetic.

Readers rallied to Julie Edwards' aid after a teaching assistant at Castle Park Infant School, in Tutbury Road, defended it against her charge that the centre did not care about her child.

Mrs Edwards, of Foston Avenue, Horninglow, said her son, Ellis, had been barred six times since September because the nurse who gave him insulin injections had herself been off sick.

The mother-of-two, who was previously forced to give up her 20-year banking career to care for her son, said the decision was harming her son psychologically and educationally and asked school chiefs to do more to cater for Ellis's needs.

But Sandra Davall, one of the school's teaching assistants, said staff went 'above and beyond the call of duty' to ensure pupils were cared for and added that attacking Castle Park was not the answer to Mrs Edwards' problems.

However, readers have rushed to the mother's side, including Debbie Beskine, who said the school's stance was barring Ellis from social inclusion as well as educational, psychological and social development - not to mention his human rights.

Margo Morriss said: "Ellis is far too young to be able to carry out these routine tasks himself and is being discriminated against because of it. To be excluded from school and the opportunity to learn is shameful."

Jane Turner said: "Many schools manage to find several volunteers to carry out blood tests and injections. Why is this so difficult for Castle Park Infant School?"

Julie Horsnell said: "If all children, irrespective of disability, are to be included in mainstream school then better provision needs to be urgently made available."

Anna Hunter, a primary school teacher, said: "This is such an important issue that I think personal and emotional responses from support staff are neither appropriate or helpful.

"If I were in Mrs Edwards' position I would feel the same and would be deeply concerned if my

child was forced to stay at home if the nurse was off sick.

"I hope this situation is resolved quickly and that Ellis can be back at school with his peers."

Mrs Edwards told The Mail she had been 'overwhelmed' by the wave of support, some - but not all - of which is believed to have come from readers linked to a group called UK Children with Diabetes.

However, she also revealed that her protest had not persuaded the school to shift its stance.

Mrs Edwards claimed Castle Park's headteacher had told her staff were 'furious' with her for speaking out and that her comments had, rather than helping her son's case, 'put it back'.

Schools response
Posted By: Jackie Jacombs on 26-Feb-2008
If the staff of Castle Park School are suggesting that by speaking out about Ellis’s exclusion that the situation will be worse for her son, that is terrible. How can a "caring " school behave like this to a small four-year-old child? This sounds like a threat! There are children all over the UK being discriminated against because adults will not help them. There are also wonderful schools who have stepped up the challenge and do not discriminate against a child because of their medical condition. Helping children with type 1 diabetes manage their condition during the school day can be done safely and effectively by non-medical personnel. This is not a problem just confined to Castle Park Infant School there are other schools in the UK who are just as bad.



Diabetes within school
Posted By: Mrs Beverley Woods on 26-Feb-2008
We can sympathize with Mrs Edwards and her son, having a diabetic Child of 8 years old ourselves we know what problems you can come across within a school enviroment. We had so many problems with our sons school, it was affecting my sons health, and adding stress to myself and my husband, if not looking after a child with a life long chronic disability is not stressful enough in its self.We made the decision to move him to another school where they are far more understanding of his condition. The government should be made aware of what is happening to our children within the educational system,as at present the system is just not fair!



Ellis's story
Posted By: Robynhood on 26-Feb-2008
It is so encouraging to have a newspaper keep the subject of lack of care in schools in the public eye. From experience I would say Mrs Edwards is going to need a great deal of support if she is to obtain for Ellis the care he needs. If Ellis is dependent on a nurse 'popping ' into school for his care then who is 'caring ' for him the remainder of the school day?. A person having to use insulin is at constant risk of that insulin depleting their blood glucose and causing an hypoglycemic fit followed by coma!. Is it really safe for any child to be in the care of adults who do not know , and will not learn, how to provide them with life saving care?. I do not know Mrs Edwards as I read your paper via the internet , but I am the parent of a diabetic child who I withdrew from school and home educated whilst living in England after a number of events in school where my child was put at risk as the result of ignorance of her condition by staff who refused to take any responsibility for her medical care . The government need telling in no uncertain terms by the press and public that the loophole they have given schools needs closing, Parents reading this paper need to think ''if my child needed care and it was not forthcoming would I be grateful to have other parents behind me in my fight? '' Type 1 diabetes is indiscriminate in who it chooses to debilitate, it strikes at any stage of childhood and requires lifelong care. No child should be forced to take sole responsibility for their care because no type 1 child or adult is physically capable of self care when hypoglycemia strikes so ask yourself what emotional damage would your child suffer if they were to see their classmate fitting with no adult present able to provide help and if it is not something you want your child to witness then back the Burton Mail and Mrs Edwards in highlighting this issue.



massive response over Ellis story
Posted By: Diane Dineen on 26-Feb-2008
Bad press is never going to well received but I hope that Ellis, who is only 4 and in no way to blame for his condition or treatment, will soon get the full education and care that he deserves. It is very helpful for the school to have a nurse but if she is absent for any reason, Ellis can be adequately cared for by other members of staff with a little extra attention. Ellis's mother should be allowed to come to the school at lunchtime to admister his injection if needed. Alternatively another member of staff could be trained to do it. Older children usually do their own so it is clearly not so difficult. What concerns does the school have?