kel4han's cousin

[Val]

I know the other post got a little off track, but please keep us posted on the status of your cousin. Simon went to the pediatrician & they tried to get him to pee in one of those bags, but it didn't work. I think he was so young (almost 2 at the time) and it was so awkward that he just couldn't go. My ped at the time also said he didn't look sick & didn't do a finger stick. After 3 hours, I took him to McDonald's with the bag still attached & came back. The rest is history - straight to the ER. Unfortunately just b/c he isn't peeing isn't necessarily a good sign. It just reminds me so much of Simon's diagnosis.

We will be praying for good news!

[mom to a sports nut]

Hoping all the bloodwork tomorrow is ok. Please do let us know.

[Momof4gr8kids]

Julia quit peeing a lot at one point of dx, too. She was tapped, I think her body was using the water she was drinking.

Also, Julia had a slow onset. Sometimes I'd see things that make a mom that knows about T1 go hmmm, but I would write it off. Because of the stuff with Joey and his last endo I was scared to check. I always will wonder if I followed my gut if she'd have been high enough for dx because even though she was 600+ and read HI on DH's meter, it was all about the food choices of that day which was mainly soda, but we were at her brothers B-day party, and there was cake and stuff, too.

Anyways, I am glad they are having tests ran. Hopefully with how you and Madison are, if it is, it is slow onset and the night wont matter.
Take care, Jamie

[kel4han]

Of course I will let you know.....I am holding myself back from calling her tonight and pleading with her to please let me poke his finger so I know he is safe and I can sleep! I tried to explain to her that "tomorrow" could be too long, but of course she doesn't get it, and I hope she never does. My problem is those dang Diastix.......on the container is has the note

Large amounts of ketones may depress color development!!! OMG!!

She is using them in the diaper tonight, but I had to tell her I never saw that noted on there before....

This is what caused my Maddison to have a near mis diagnosis. Becuase her Ped follows the protocol of checking the urine first for sugar. How many kids do you think have large ketones when they have the urine sugar checked that causes no color change!!?? Probably alot! If these Peds are using these silly Diastix for the initial check, that is alot of kids that could be at risk and I am panicked about that as well. So, I am understanding now how so many kids are at the Peds multiple times with a wrong diagnosis.

That is scary. I will keep you posted, hopefully with good news.

[Treysmom]

We are thinking of your cousin. Saying a prayer for him.

[EmmasMom]

Hey Kelly, I really think even super large ketones will show up on a ketostick. It may not turn the darkest color, or it may take a bit longer to "develop" but it should still give a positive result.
When Emma was dx'd it took an entire week for her urine ketones to clear, they were very high at first, but the stick always changed color. Maybe that will ease your mind a bit.:cwds:

Has she been able to get urine yet?
Ironically we weren't able to get Emma to pee in the little bag the day she was dx'd either. We waited nearly 2 hours at the hospital and then finally took her home. Luckily she'd had blood work done too, and the results were back before she ever peed in that stupid bag!! She was still wearing it, empty, when she was admitted to the hospital. Can you say bad idea????:rolleyes:

Please keep us posted!

[Brensdad]

Can she just use one of those "multi-purpose" sticks that reveals if there is glucose in the urine? That's how I diagnosed myself!


Of course I will let you know.....I am holding myself back from calling her tonight and pleading with her to please let me poke his finger so I know he is safe and I can sleep! I tried to explain to her that "tomorrow" could be too long, but of course she doesn't get it, and I hope she never does. My problem is those dang Diastix.......on the container is has the note

Large amounts of ketones may depress color development!!! OMG!!

She is using them in the diaper tonight, but I had to tell her I never saw that noted on there before....

This is what caused my Maddison to have a near mis diagnosis. Becuase her Ped follows the protocol of checking the urine first for sugar. How many kids do you think have large ketones when they have the urine sugar checked that causes no color change!!?? Probably alot! If these Peds are using these silly Diastix for the initial check, that is alot of kids that could be at risk and I am panicked about that as well. So, I am understanding now how so many kids are at the Peds multiple times with a wrong diagnosis.

That is scary. I will keep you posted, hopefully with good news.

[Spook75]

I wasn't there when Wanika took Caedence to the doctors, but they used a catheder (spelling?) to get the urine. QUite and invasive procedure on a two year old :(

Sadly, her sister ( 5) was there two to witness her sister being "hurt" :(

I was really shocked they didn't just do a fingerpoke thingie, but they did take blood for analisys that same moment. But I think it was after checking the ketones. Wanika knows the answer to that .

[thebestnest5]

Can she just use one of those "multi-purpose" sticks that reveals if there is glucose in the urine? That's how I diagnosed myself!

That's how we dx'd Livia with a strip that had ketones and glucose on it. I say dx'd, but I was really hoping something else could cause that...kidney infection, some weird appendicitis...I was grasping...:o


I told Livia that I wanted her to use the potty chair in the bathroom. After she was finished, I went in there with the bottle. I bent down to dip the strip...I wasn't even standing when both of the rectangles on the strip were the darkest color. I didn't even have to compare it to the bottle...it was so obvious. I did one more strip, just to make sure and then I called to get her in to see the Dr.

Liv was a very ill; but she looked great. Even the pediatrician said, "I am encouraged by how vibrant she looks...." I still couldn't believe that it was really happening...I think I was in a shock/denial at the same time. It scares me to think what could have happened to her, if we had dismissed other symptoms because she didn't look sick.

[zimbie45]

When charlize was dx too, It was becuase of test strips.. After she had used the potty 3x at teh doc office in 5 min, I finally asked for a cup,. they then put us in a room.. THe nurse came in very quick.. all bubbly and perky like seh was so happy she actually got some real action. and told us that charlize was diabetic becuase she has ketones ( VERY BUBBLY).. They then decided they need to check her blood sugars to see where she was at.. and all the meter read was HI, (((Like a nice friendly welcome greating us to our new world)))) They didnt know what HI, I told them, they didnt believe me and re did it, same thing agian, then they read the manuall, did a controle, re did again and again our friendly welcome... then off to the ER...

[Nancy in VA]

Why doesn't every doctor's office have a Blood Glucose meter. That would seem so easy.

Because I was Gestational Diabetic, I had a meter that I used to stick Emma's finger when I suspected something. It was withe xpired strips, but I think a HI is a HI regardless. Because I could give them a data point when we went to the ER, they just stuck her finger again and we moved on from there. The ketone test came AFTER we were admitted to the PICU about 5 hours later - they didn't need to do the test to know she had them.

[Brensdad]

Why doesn't every doctor's office have a Blood Glucose meter. That would seem so easy.

Because I was Gestational Diabetic, I had a meter that I used to stick Emma's finger when I suspected something. It was withe xpired strips, but I think a HI is a HI regardless. Because I could give them a data point when we went to the ER, they just stuck her finger again and we moved on from there. The ketone test came AFTER we were admitted to the PICU about 5 hours later - they didn't need to do the test to know she had them.


Isn't that strange? I don't understand that either. It sure would save a lot of time and trouble, and it would be a whole lot cheaper!

[kel4han]

The Diastix I am referring too only test for sugar......so per the bottle if you have ketones it won't even change color to show sugar, therefor Dr's offices wont test for ketones if there is no sugar.....so they are sending kids home without a diagnosis. When I worked as an MA in the Dr's offices the protocol was to always check sugar first. If sugar, check ketones, if ketones check with a finger poke. It is really ridiculous. I think they try to avoid poking the finger for the childs sake? I dont know, but if Dr's are still using this protocol today then it needs to change.

Blood work done this AM, still waiting of course.

[Brensdad]

Absolutely ridiculous. I guess what it's going to take is some child somewhere to die at home from DKA while waiting for lab results. Then maybe the pediatricians will get glucometers.

[Schpoodle's Dad]

She is using them in the diaper tonight, but I had to tell her I never saw that noted on there before....



Probably too late, but tell her to put a cotton ball in the diaper. It's a lot easier and more accurate than ripping open the diaper to get a sample.

[kel4han]

I did tell them to use a cotton ball, THANKS!